Chronic illness’ worst feature is that it ALWAYS shows up! Somedays you think you have outsmarted it and you got away with something, but payback stinks! I had a super busy and rewarding week. Besides my awesome PAALS visit, I had doctor’s appointments, tech classes, and some family/friends time. Now I am “paying” for it! I hate this.
For the last 2 1/2-3 weeks I’ve been dealing with some nasty GI issues. I am not quite sure what is going on, but having trouble keeping food down after I eat, regardless of what I eat and dealing with some major abdominal pain. So far we know my platelets are low and my liver enzymes are super high and increasing. Additionally, my spleen is also enlarged. CT hasn’t shown any blockages or anything surgical, which is good since all my major disposable organs are gone!
I have been working with an awesome, old school type GI doctor who has ordered a huge outpatient workup, but scheduling these tests in a timely manner has been difficult. Yesterday, I drew a line in the sand and decided something had to give. The pain was making me miserable.
So, I am back at the hospital, trying to find some answers while they help manage the pain and nausea. I would be lying if if didn’t admit that I am nervous that this might go the direction I was going in several years ago, when I ended up with a PEG tube for feeding. That continues to be one of the hardest medical journeys I have taken. I just keep reminding myself that this is most likely something different and that is not the path we are on.
I am thankful they admitted me this time. I need some answers and some relief. For now, I am resting and trying to get a hold of this stupid pain.
I’ll be in touch with updates!
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