Fiercely Independent Pam

Tag: PAALS

  • Welcome June… I’ve Been Waiting For You; Good Things Ahead!

    Welcome June… I’ve Been Waiting For You; Good Things Ahead!

    So, it’s finally June. Not that I wanted to rush my birthday month, but there is a lot going on for me in June. Medical appointments, progress on the service dog front, exciting visitors, and hopefully some time at the beach!

    Tomorrow is my first adventure for June. I am headed south to Charleston for an important appointment at MUSC. I will be receiving Botox injections in my bladder to help combat the symptoms I’ve been having. If all goes well, I will continue to get this every couple of months. While I am not looking forward to the procedure itself, I am looking forward to its results. I have heard good things from other’s that have gone down this path. Plus a road trip with my niece is always a fun adventure! I’m looking forward to catching up with her and all of her happenings.

    Next, is BIG! June 10th is a HUGE next step forward with PAALS and the process of getting a service dog. I will welcome the PAALS team (with dog in tow) to my community and apartment. They will be discovering what I need to do to get my space ready for a wet nosed, lovable, smart dog. The team and I will also be doing a community visit; we will be exploring my local grocery store while I interact with the service dog in training that will becoming to visit. After these visits, I am hoping to get my official client letter from PAALS, which will allow me to begin my fundraising and planning. Please send extra good thoughts and prayers my way for this event!

    By mid June, I will be looking forward to welcoming my dear friend and her fiancé. I am excited to spend time with both of them and hopefully get some incredible beach time in. Our only plans are to enjoy each other’s company, get tan, and enjoy the ocean breeze! There is nothing better than being able to simply pickup where you last saw a good friend(in this case its been over 5 years) and enjoy each other’s company.

    Today, in honor of all this coming, I am wearing a new t-shirt that I found- Not only is it featuring the Fraggles from Fraggle Rock, it reads- Powered by Positivity! I absolutely love it!

    There will be more doctor appointments, warm days, and exciting adventures but these are definitely the highlights I am looking forward to!

  • Is It Really Already May?

    I have been trying to get to MUSC for my AV Fistula because it’s looking and feeling kinda funky. There is a bulge that has never been there before and its “thrill” has gotten much more powerful. It was scheduled 2 weeks ago and got bumped off the OR schedule. Then I was scheduled for this past Thursday, and the surgeon wasn’t available, now I am scheduled for Monday morning. The procedure has to be done in the OR, but no cutting is taking place(supposedly). I am not feeling the best about this and not confident in a good outcome. Just my gut feeling.

    Then, there is the issue of the giant cell arteritis diagnosis- I have had symptoms since December when I was evaluated in the hospital but they decided to not do a biopsy because I was younger than the average age. When I saw my rheumatologist, he had the biopsy scheduled for the next day. The biopsy was negative, but my rheumatologist doesn’t trust the findings because so much time passed before having it done and during that time, I was on high dose decadron. So, I started infusion treatments and continued to take steroids. I still have the odd headaches around that area, so I am now going for an angiogram CT this week.

    Also up this week, but I might reschedule, is an appointment with the vestibular ENT at MUSC. He, besides being the genius who found my canal dehiscence and performed my craniotomy, is treating me for some intense ear pain caused by nerve issues. He is a wonderful doctor and always tells me straight on what is going on and what I need to do!

    For the most part, I am feeling pretty good these days. I feel that my strength has returned to my “normal” but I am still struggling with my balance. When I am able to hold on to something while walking, I am fine, but unassisted, I walk like I am drunk. My Zeen has been amazing and today I managed to walk a mile with it. Now I would like to build to walking the mile without breaks. Yesterday, I rode the NuStep bike for 25 minutes and gradually adding more time.

    My blood pressure is running super low again these days. I have gone back on medication to bring my blood pressure up to just above normal so that when it drops as I stand, it is still high enough to support me. I am struggling to maintain this after a large meal, since the blood pools more in my stomach for digestion. I have for multiple reasons, try to avoid heavy or larger meals as much as I can.

    Despite gaining and losing the same 5 pounds for the last month, I am closing in on the 100 pound mark of weight loss. I am very proud of myself for accomplishing this and hope it truly benefits my health. My biggest frustration is realizing I don’t have a lot of clothing to wear and that I have to go through my drawers and closets to remove bigger sizes.

    In non-health news, I continue to keep myself busy here in the community. I create and distribute a monthly newsletter that includes previews of upcoming events, tips/tricks, pictures of previous events, and more! The residents seem to really enjoy receiving it each month. I am still offering technology help. I absolutely love doing this and have helped residents do everything from make their first phone call with a cell phone to learning how to play their favorite game on their tablet. I get paid in all sorts of ways including M&M’s!

    Things are progressing well on the service dog front as well. The biggest update to share is that the next 2 steps will take place on June 10th. Folks from the client applicant committee of PAALS will be visiting me to see my apartment and the facility as a whole. The other step is considered a community assessment and for that I get to interact with one of the wonderful dogs in training at the grocery store! Both parts of this visit will be exciting! Hopefully, all will go well and I can officially become a client. This would then start my fundraising process to cover the expenses of Team Training. The process is long and requires patience, but I am beyond happy giving the time knowing that something amazing will come from it.

    May is a great month- always busy, always wonderful! I get to celebrate my birthday again and the weather never disappoints. With a prayer, some hard work, and patience, I will see the fruits of my labor and trust.

  • Dreaming of Wet Noses Again… Gaining Strength and Making it Happen…

    Well it was bound to happen… I made a giant leap and ordered my first new pet product. It’s a smart collar that is almost like a fitbit for a dog. I was excited to do so and being then”gadget queen” I just knew it was a good purchase. But now I wait. PAALS is accomplishing amazing things, with this, being their 20th year. I am excited to hopefully attaining/befriending my service dog this year.

    I have learned a lot more about the process that PAALS uses to place service dogs with clients and am very ready to take on training, fundraising, and the hard work that is needed to build a bond between dog and handler.

    I spend a lot of time dreaming about a service dog and all it will be able to do for me. I think of dropped items, holding doors, accessing areas of the grocery store that I can’t access now. And the biggest thing- companionship- I long for sharing my bed with a sloppy, lovable beast of sorts. It’s been a long time since my dear Sofi was able to come into bed with me, but I remember it well, and it felt so perfect.

    Next steps include a site visit that will be combined with a community visit. PAALS is going to bring a service dog to help me negotiate the grocery store and gain some skills with cues. I so appreciate their willingness to help with transportation since the beach and Columbia is not the closest. It looks like this visit is going to take place in either March or April.

    I am also enthusiastic about the training process. I love learning new things and processes. Learning cues, signals, and directions are right up my alley. I am looking forward to daily training exercises and getting outside for walks several times a day.

    October is the big deadline. My 25th College Reunion is in October in Baltimore. I am so looking forward to seeing my friends, and having my service dog and making the big travel plans by flying to Baltimore. I missed my 20th reunion because my dad was dying so being on campus is even more important to me. It sounds like its a long shot to have my dog in time for reunion, but patience is the name of of the game and I will demonstrate that the quality of the process is more important than than the timing.