Blog

  • Seven Years Ago… The Best Decision I Didn’t Make Myself!

    I know I write about my Facebook memories a lot, or at least it seems like a lot. It really is my favorite feature of Facebook- I love looking back at the last 16+ years. On this day, seven years ago, I made it official that I was not returning to work (teaching or as a principal) but, with my doctors guidance, filed for long term disability and would be moving to Florida to spend some much needed time with my parents. I was so mad that I couldn’t make the decision for myself, I never thought I would get over that!

    At the time, I felt like a complete failure. I was a talented teacher who couldn’t teach and needed to move in with my parents at 40+ just to make ends meet. It was devastating! My entire world was turned upside down and I was faced with fitting everything I wanted with me for the foreseeable future (and Sofi, my 80+ pound lab) into my Rav4.

    I gave away most of my furniture, put some precious items in a storage unit, and packed up Sofi and I for an adventure that neither of knew what to expect. It turns out that this was the best thing that ever happened to me. Sofi got to live her best retirement life and I traded the classroom for some amazing and needed memories with my parents.

    I was worried that I would lose purpose from my life. I was worried that I would be miserable and HOT! I remember driving the many, many hours south to Punta Gorda and coming up to a stretch of the highway that was outlined in gorgeous palm trees and a bright blue sky. It was my perfect God wink that I was doing something right.

    I had about two years with my parents that consisted of sorting out their needs, pills, and insurance nightmares. We also had many nights of ice cream for dinner, car shows, and easy Sunday rides. We swam in their pool almost daily (especially Sofi) and every morning, my dad would say, “Just another day in paradise!”

    Then the harder days came, mom’s memory was failing and she was loosing mobility, she had some close calls including a major fall and emergency brain surgery followed by a long stay in rehab. Dad’s cancer began to spread and caused him a lot of pain, but he continued to do the cooking, laundry, and other jobs around the house. I taught him the wonders of the instapot and instacart and he learned all about dealing with my food allergies. Of course all of this was during Covid and we desperately needed each other’s company.

    My health continued to disintegrate. Multiple hospitalizations, needing a vp shunt, and mega doses of steroids took their toll on my body. Somehow together, we made it work. I ended up giving up my car, which was a big deal to me, little did I know that eventually I would have to give up driving all together.

    Then came the hardest days. In the same week, my dad passed away, we placed my mom in a nursing home, and I found myself alone again. Luckily, my brothers and sisters are amazing and we continued to work together to get the tasks done. My sisters ended up staying for a few weeks and it was the best kind of medicine for me! Then I found myself alone, in a house I had no business being in (too much to take care of).

    I continued to visit my mom pretty much daily at the nursing home and found that was the best thing for both of us. I showed up with an iced cappuccino from Dunkin and either a donut or munchkins each day, with the occasional break for ice cream. We planned birthday parties and I listened to some pretty crazy stories. At the time, I didn’t realize, but I would do anything to have to make one more stop at Dunkin for her!

    All in all, seven years ago a decision was made that changed every trajectory of my life, but it was the BEST decision I could’ve made. I don’t know how things would have been different but living with my parents for those years was beyond amazing. if you are living through the “caretaking” phase with your parents, just know you will barely remember the “bad” moments, but will forever remember that you were there for them, just like they were there for you!

  • A Busy Week of Ups and Downs and LOTS of Appointments!

    Spoiler alert- LOTS going on! This week was full of twists, turns, and appointments. Some good news, some complications, and of course a lot of smiles!

    Monday brought me to my second home, MUSC, for an appointment with a spinal specialist to determine what, if anything, can be done for my back and neck. It also served as a follow up on my L1 compression fracture. The doctor was excellent and had some ideas for all of my issues. He recommended a kyphoplasty for the fracture since, while it is still stable, it’s not healing well. If it is going to happen, it will be done at the main hospital by interventional radiology, but a consultation is necessary.

    Monday also brought an unexpected ER visit upon the guidance of my home health nurse. The hematoma that I ended up with at my last hospital visit was looking bad and angry. The ER wasn’t super helpful but I managed to get an antibiotic as well as a referral for wound care.

    Tuesday was a day of appointments at home. I had PT, OT and an appointment with my medical advocate. I also had a GREAT conversation with PAALS about next steps in regards of “my” service/assistance dog. I am ecstatic to see what the future holds for this area of my life!

    Wednesday was a self-care day! I had my hair cut and colored by my favorite stylist, Amanda. I shared her a smile from Seeds of Happiness with her and she was super excited to share it with her son! I also made a TON of phone calls trying to catch up with scheduling new appointments and follow ups.

    Thursday was a tough day, I really struggled to get up and shower, needing to sleep for two hours afterwards. I had an appointment in the afternoon with the nurse practitioner at my pulmonologist’s office. The appointment was intended to be a follow up for the nodule that was discovered on my lung and the follow up CT scan. The nodule couldn’t been seen because the scan showed pneumonia. I was put on an additional antibiotic (my third), nebs, and Musinex. The bright spot of the day was getting to see my nephew when my sister in law drove me home.

    Friday afternoon was my long-awaited wound care appointment. I didn’t know what to expect and what would happen moving forward. I had a 1pm appointment and was taken right back. The nurse who started the process was amazing! She took my complicated medical history, examined my wound, and set me up for the doctor. Then, the doctor decided that the wound needed a full debridement. This process was probably one of the most painful experiences I have had despite the use of lidocaine. It was miserable, but necessary. He also recommended the use of a wound vac (to be started at my appointment next week). I will visit the wound care clinic weekly for the foreseeable future and then home health will touch base weekly as well.

    Unfortunately, this week made me cancel a lot of plans because of not feeling well. I hate that sometimes it comes across as flaky. I hate even more that I miss out on good things. I used to say that at some point this will pass, but I’m not thinking that will happen. Until then, I will keep smiling, hoping, and praying!

    Me and Amanda sharing a Seeds of Happiness smile!

  • Home Again: Finding My Way Back to Church! Alleluia!

    I am a self proclaimed “Cradle Catholic”, meaning I was raised in the faith and through discovery and reflection continue to practice the faith. I have had my share of “battles” with the Church, but I always find my way home. I love the traditions, sights, smells, and sounds. I love that no matter where you are, the Mass is familiar. All of this to say, after over three or four years, I found my way back to a physical Church for Mass this morning.

    Through the gift of volunteers, I have been able to receive Communion each week and join in prayers, but the actual physical act of attending Mass in a Catholic Church was not possible due to many different reasons including my health and its stability, as well as transportation needs. Again, with the help of volunteers, I found two women ready to help me with the transportation issue and I am so grateful for that.

    I was able to join in the recitation of the Rosary prior to Mass and it was the first time that I said the Rosary in a group setting since studying the Rosary using Ascension’s Rosary in a Year program. My level of understanding and devotion was much deeper than before the study. I spent this time focused on Our Lady and the gifts she has bestowed on me in the last few years.

    Then came the actual Mass, while not my favorite “flavor” of the Mass, it was amazing to be in a church with statues and art work to focus my attention on while participating in the familarness of the Mass. I was impressed by how much rote memory took over and I participated fully in the prayers. Of course the highest point was being able to receive Jesus with praise and thanksgiving.

    On a side note, I have to comment on the accessibility of the Church. Handicap entrances without any ramps or similar plus a purposeful planned handicap seating area made the experience pleasant and welcoming for sure. I hope that as my health improves, I will be able to stand more, but for the first time back, I didn’t want to cause any problems. Our churches have come a long way in the area of accessibility.

    Returning “home” is a big step in my quest for my “new normal.” I was missing visiting Jesus in His house. I didn’t realize how much I missed the rest of what comes with attending Mass in a church. The sights, smells, and bells, as it is said are comforting and give me fond memories of everywhere I have worshiped over my life. As for now, I have found my new home and can happily say I was pleasantly welcomed there!

    A large stained glass window at the front of St. Andrew's Church