Tag: Don’t Let the Hard Days Win!

  • Holding it All Together- Not So Pretty, But Getting the Job Done!

    Holding it All Together- Not So Pretty, But Getting the Job Done!

    Have you ever had that kinda morning? The one that makes you think you should just run back under the covers? That was me this morning! So much happened, I’m not quite sure I will remember it all!

    Yesterday, my power wheelchair began randomly shutting off and jerking me forward in the process. I thought it was the connections and put new tape on the this morning to keep them together better. Then I charged the wheelchair. When I removed the charger and turned it back on, I got nada! No power at all. Meaning I didn’t have use of the most useful item in my apartment! I managed to finish my morning routine with my walker. I also made a phone call to the wheelchair company to have them call me as soon as possible!

    Next on the list was that my deposit that was supposed to come through to my bank account did not. Another phone call and figured out I added an extra digit to my account number by mistake! Could take up to a week to work out! Great!

    The shining spot of the morning was physical therapy where I made it 2 laps (1/2 mile) around the building in my Zeen and felt great! I created a new goal- 1 mile (4 laps) by my birthday (May 19th). This will be a HUGE accomplishment!

    Then the hits kept coming… I went to lunch using my walker and transferred to a regular chair. That went ok, but I had to stop several times walking back to my apartment because I was lightheaded and dizzy. Also, the wheelchair repair guy is booked for the remainder of the day and unable to get to my wheelchair until tomorrow afternoon.

    Tomorrow I was scheduled to have my fistula looked at through a special procedure in the OR at MUSC in Charleston. I say was because I found out that I got bumped until next week, but I guess that is still better than going there and then getting bumped! Now I’m scheduled for a 6:30am arrival! Ugh!

    So, here is where I stand: deposit coming in tomorrow, wheelchair repair tomorrow (hopefully this will not wipe out my deposit), fistula procedure next Thursday, thinking I am going to challenge myself and take my Zeen to dinner.

    Days like this is a sign to give yourself some grace. Not wallowing in self-pity, but recognizing that you are holding on with tape (and hopefully a prayer or two). I will proceed gently with myself and laugh through the unplanned moments. This is what we are called to do!

    A goose riding a scooter with duct tape- it reads "keeping it together with tape and denial"
  • Some Setbacks, but Mostly Progress…

    It’s amazing how fast we can take advantage of things. Three weeks ago I was barely able to stand or walk and now I get up like nothing happened. I don’t want to forget all the hard work I put in to get where I am now, but it’s amazing how fast you do forget how hard it was.

    Besides my recent fall, I’ve been doing super well and exercising on a regular basis. The fall left me severely bruised (especially on my bottom) so I am taking a break from the Zeen for a couple of days.

    Today I am headed to the rheumatologist for a check-in. He is another great doctor on my team, it helps that I taught his kids and always enjoyed talking with him.

    Yesterday, I spent some time repotting some plants and loved being able to do that. My life as a plant mom is awesome, I really enjoy seeing my plants grow. I have a few more to repot but that will come in time too.

    As I look back at all I’ve accomplished in the past month, I am so proud of myself and grateful for the support of my readers, friends, and family. Hopefully things will even out for a while and I will be able to accomplish even more!

  • The Ground Sure is Hard!

    I still can’t believe it happened! I was simply transitioning from the sink back to my wheelchair and BOOM! I went down, and HARD! I reviewed my video footage afterwards (no video of the bathroom but sound). I definitely shouted some expletives and some other unmentionables!

    Sometimes, like this time, I know I am going down. Other times, especially when I pass out from blood pressure, I simply find myself on the floor. I really want to make it a long term goal for PT that I can manage to get up by myself considering that, while I love the local fire department, they don’t need to be coming to my assistance if I can do something on my own.

    So, I am left with several bruises, Including a large one on my bottom, and some scrapes from my wheelchair. It could’ve been worse and required a trip to the ER. I know I was lucky.

    I don’t think other people realize the emotional toll of a fall. Your whole world is untrustworthy instantly. You hesitate to stand again, to transfer again, or even leave your chair or bed. It is totally more mental and physical. I have found that it requires me to challenge my thinking pattern and be willing to take the chance of falling again.

    Yes, it is scary, and yes, it is “easier” at first to stay in bed or my chair, but the show must go on and I need to try again. The first transfer is the worst and then a few hours later you are barely thinking about the chance of falling because muscle memory took over.

    No matter what, the ground in a first floor apartment sure is hard!