Tag: Don’t Let the Hard Days Win!

  • Home Again: Finding My Way Back to Church! Alleluia!

    I am a self proclaimed “Cradle Catholic”, meaning I was raised in the faith and through discovery and reflection continue to practice the faith. I have had my share of “battles” with the Church, but I always find my way home. I love the traditions, sights, smells, and sounds. I love that no matter where you are, the Mass is familiar. All of this to say, after over three or four years, I found my way back to a physical Church for Mass this morning.

    Through the gift of volunteers, I have been able to receive Communion each week and join in prayers, but the actual physical act of attending Mass in a Catholic Church was not possible due to many different reasons including my health and its stability, as well as transportation needs. Again, with the help of volunteers, I found two women ready to help me with the transportation issue and I am so grateful for that.

    I was able to join in the recitation of the Rosary prior to Mass and it was the first time that I said the Rosary in a group setting since studying the Rosary using Ascension’s Rosary in a Year program. My level of understanding and devotion was much deeper than before the study. I spent this time focused on Our Lady and the gifts she has bestowed on me in the last few years.

    Then came the actual Mass, while not my favorite “flavor” of the Mass, it was amazing to be in a church with statues and art work to focus my attention on while participating in the familarness of the Mass. I was impressed by how much rote memory took over and I participated fully in the prayers. Of course the highest point was being able to receive Jesus with praise and thanksgiving.

    On a side note, I have to comment on the accessibility of the Church. Handicap entrances without any ramps or similar plus a purposeful planned handicap seating area made the experience pleasant and welcoming for sure. I hope that as my health improves, I will be able to stand more, but for the first time back, I didn’t want to cause any problems. Our churches have come a long way in the area of accessibility.

    Returning “home” is a big step in my quest for my “new normal.” I was missing visiting Jesus in His house. I didn’t realize how much I missed the rest of what comes with attending Mass in a church. The sights, smells, and bells, as it is said are comforting and give me fond memories of everywhere I have worshiped over my life. As for now, I have found my new home and can happily say I was pleasantly welcomed there!

    A large stained glass window at the front of St. Andrew's Church
  • When an Uber Ride is More Than Just Transportation!

    Sometimes an Uber ride is more than transportation. Yesterday, I ordered an Uber to go get my Actemra infusion at the rheumatologist’s office, which is only a few miles away. I waited with my rollator and did what I always do when the driver says hello- “Are you able to help me with my rollator?” I asked. She quickly pointed to her handicap parking hangtag and said, “Sure, we handicappers need to stick together!” I knew this was going to be a good ride.

    I got in and quickly exchanged niceties which quickly turned into a full blown conversation about being disabled. We didn’t share diagnosis’s or specifics but both felt like members of a secret club that only those on the inside could understand. We talked about family support, strangers asking questions they had no business asking, and the loneliness of being disabled.

    We shared heartbreaking times that we missed out, or worse, pushed ourselves so hard we ended up in bed for three days afterwards. I think it was the first time I talked with someone who understood my life in person and not online. It was so refreshing.

    She shared and showed me that she, like me, had a fistula and sometimes people think her fistula is a scar from drug use. I told her I never had that problem, but stored that piece of information in my head for later. I offered some advice about mobility devices, especially about my Zeen.

    Unfortunately, the ride was quick and we were saying our goodbyes before we knew it. I thanked her for the conversation and told her it was a breath of fresh air! She seemed to totally agree!

    I no longer drive and depend completely on others to get around, except where my wheelchair brings me. I use buses, Uber, and private transportation companies. I find most of my interactions with drivers to be positive or at least neutral. This trip was positively amazing! You never know who you will meet! I hope I offered as much to this driver as she offered to me!

  • Seeds of Happiness: Spreading Some Smiles and Joy!

    Seeds of Happiness: Spreading Some Smiles and Joy!

    About twenty years ago or so, I was shopping in a little store in Chestnut Hill, Pennsylvania, and found something unique. It was basically a lump of clay that was brightly colored and had a big smile! I picked one up and read the story that came with it and fell in love. The business was called Seeds of Happiness and they exist to spread joy and happiness. I was sold, literally and bought a few for myself and to give out. I still have my original yellow smile and it sits on my dresser.

    Fast forward to today and my small collection that incudes a pumpkin, and lots of opportunities to share a smile with others. As I launch my second series “The ABC’s of My Favorite Products”, I decided to include Seeds of Happiness as my “S.”

    I wrote to Mark, the genius behind this idea and asked him if he could gift me some smiles to make people’s day! He was more than generous and sent a great package that made my day! I decided to start sharing my new smiles with those I interact with! The bulk of my interactions are in my community or with healthcare workers(who really need a smile).

    I decided also that I wanted to document the interactions by pictures or even better would be by video. These interactions would then be shared on my socials and with all of you! I know I should probably be going in some sort of alphabetical order with my products, but I felt a God nudge and started with the Seeds of Happiness Smiles!

    My first smile was shared with none other than a Pam! She was my phlebotomist at the GI office on Thursday. I received some not great news and she was just a breath of fresh air and was determined to get my blood in spite of being such a hard stick. I asked her if she could help me with a “project”, and she agreed. I presented her with a smile and we decided to take a picture of her with her new smile!

    Mark was so generous that I have lots of opportunities to make others smile too! So hold on to your hats and be prepared for videos and pictures. If you are looking for a good gift for someone check out the website for Seeds of Happiness.

    GO AND SPREAD SOME KINDNESS!

    The Front of the Story Card!
    My new friend Pam, with her pink smile!