Fiercely Independent Pam

Category: Memories

  • The Hard Work Begins Today: A First Day of Inpatient Rehab!

    So it begins.. I arrived at inpatient rehab yesterday after a few delays mostly because of the weather (crazy snow storm!) I ended up paying for transportation and it was a good decision since I am still having problems standing up and transferring.

    I was beyond welcomed by the staff here for rehab and they have been wonderful! I am confident that I forgot a few things, but hopefully I can have some help from my family. I am super excited to start working hard- I will receive at least 3 hours of pt/ot each day, which is exactly what I need. Right now I am finishing my Bible in a Year Podcast, which is nice to be able to stay up on.

    I am looking forward to unpacking my stuff and setting up for rehab, as I packed up pretty decently including lots of pants and t-shirts, but missing catheters and a watch charger! All in good time! For my first night I am wearing my special Buckee’s pjs that I picked up when I was there for my interview. It was a fun nod to what I have accomplished already.

    I think I have said this before, but wanted to update people about the progress of the service dog. In addition to the service dog, I am continuing with rehab. The next steps is to have a site visit here at my apartment and they will also be bringing a dog to help me demonstrate some skills, hopefully at the grocery store. This should be taking place after the committee meets- around late March/ Early April. I am thankful that they are willing to come here. From there, the next steps would be to be accepted as a formal client and begin fundraising for team training and similar. Then begins the “Fun” part!- Something special PAALS calls “Speed Dating” where we make sure the right connection is made between a dog and the “handler.” Eventually, team training will take place, but this is a far way off. All of this is super exciting!

    In the meantime, I will be working hard at standing and completing rehab goals. I am not sure exactly what it means to finish my antibiotics and future doctor’s appointments, but I moved as many appointments as possible. Time to track down what I am missing!

  • Still Stuck: Needing an SOS To Get Home, Just Not a “Ride or Die!”…But Maybe a Zeen too!

    SO, I’m still stuck at the hospital awaiting a new picc line, everything else is all set to go home. I wish I was stronger and felt more confident about getting up and about, but it is beyond time to leave here and just “make it happen.”After all, my Zeen is awaiting me, along with my comfy bed.

    My Zeen is awaiting me and I am eager to try it out and use it for meals and getting around. It will be a big game changer for me in terms of using my legs and not always being “stuck” in my awesome wheelchair. I will be sure to post some videos once I get the hang of it and such. Decorating the Zeen is of high priority as well!

    I am glad too to not being taking the foley catheter with me, of course this means I have to be able to manage the toilet and self-cathing again. The foley causes so many problems including kinks and what I call “floods” meaning I feel like I have to pee but its happens too quickly to do anything with. So, I make a mess. Hopefully, once I get home and back on my regular meds and without a foley, I’ll stay dryer.

    In other worlds, I found this image and it too fits me like a “T” Mostly about needing to stop and get some food. I miss my friend who is in rehab from shoulder surgery and looking forward to reconnecting with her again. She is working hard at rehab and hopefully all the hard work will pay off. We are not necessarily “a ride and die” type of people, but I do trust her with my life and count on her as part of my “Tribe.”

  • Infection Invaders: Trying to Stay Together In Light of Many Different Infections!

    So, I’ve been a little trapped here at the hospital. Faced with a large kidney stone, Picc line infection, as well as a pretty bad UTI, I’ve haven’t been feeling the best. I will need several weeks of IV antibiotics at home and hopefully home tomorrow after a new picc line and clear cultures.

    I really hoped to avoid the chaos of all of this, mostly the IV antibiotics because they are both expensive over time and require a lot of attention. Hopefully they will come in the form of the “squeeze ball” and not a pump. Either way in creates a lot of medical trash and organization in dealing with various infections.

    Next, is to figure out how to keep practicing getting up and using my strength to make sure I am still able to get up and down from the toilet and such. This was the final straw why I ended up coming to the hospital, I was unable to get off the toilet and needed lift assistance, well this, and the major infections.

    Finally, I have to figure out what is next with the kidney stone. Apparently, I will have to have it “blasted” to get rid of it, but I was told that shouldn’t be a big deal.

    My biggest focus right now is getting up and being strong enough to get home, as I am feeling the need to get home and organized- I ordered a bunch of stuff, including my Zeen, and want to try it all out!

    Looking through the week, I am excited to have lunch with a friend and then an awesome facial scheduled for my niece’s birthday at the end of the week. I tried to cancel everything else going on in order to organize myself.