Fiercely Independent Pam

Tag: Zeen

  • I Took the Zeen Out for a Spin and it Felt So Right!

    For the past couple of weeks, I have been trying to get strong enough to be able to stand up with my walker. I started this process in rehab and never quite finished. I was much more comfortable and motivated at home. All this work was for a very specific purpose- using the Zeen.

    Yesterday, I was able to stand with my arm lift chair at a “regular” height, which I counted as a major victory. It was also a sign that I was ready to try my Zeen. As a side note, I have been wanting a Zeen since I first saw them about a year ago. I tried to get insurance to cover the cost, but it wasn’t going to work. So I purchased my own Zeen. I was so excited on delivery day, but God had other plans for me and I landed in the hospital with sepsis.

    Fast forward to today. I was able to stand up in my arm chair an use my walker to get in position with the Zeen. I figured out the “controls” and in a short bit, I was navigating around my living room and kitchen. The carpet made things extra difficult but a few more times, my legs should be up to the challenge.

    I was so proud of myself for getting into the Zeen and navigating around. It was a goal In set for myself and it feels great having achieved it!

  • UTI’s, Antibiotics, Standing, and ,More, All Good Things Happening

    So, it finally happened. My UTI came back with a vengeance. I started having symptoms yesterday and it got bad overnight. Luckily, my primary care already had sent a urine culture out so we know what we are dealing with an what antibiotics are a match.

    I have a call into infectious disease and hopefully the antibiotics won’t be too expensive.Last time they were $3000 which is crazy!

    I had all sorts of trouble calling the infectious disease doctor, but I finally was able to leave a message and the receptionist called me back and will call me back again when the doctor gets in from the hospital.

    Hoping this round of antibiotics clears everything up, as there is nothing more annoying than having a UTI. I am pretty sure the antibiotics will be via IV and not oral, but just hoping they aren’t too expensive.

    In other news, I did great today with PT standing up about 99% by myself, which is a huge improvement. It’s also not a scary for me. PT/OT and I created a calendar for this week to keep trying to stand and hopefully even try some pivots.

    I am so eager to get to the point that I can use the Zeen, but I’m not there yet. I am thinking I will be using it in the next two weeks.

  • It’s Beyond Time to Get Home and Reset…

    So, I finally got a new picc line– a little different than imagined, but it’s in and I am able to get my IV antibiotics through it as well as my IVIG infusions. I am so thankful for the team in IR this morning that “just made it happen.” Then I got back to my room and my breakfast was waiting for me! All good signs of things to come.

    If I haven’t said it before, chronic illness is expensive. My 3 weeks of IV antibiotics is going to run over $3000 and that’s with excellent insurance. Told them that I was just going to have to make small payments towards that expense.

    My first priority in getting home today is having an amazing lunch with an old friend who we have been playing phone tag for a long time. It will be great to catch up with her. My apartment is going to be a little bit of a mess as I organize my new mobility devices, like my ZEEN. I am hoping the Zeen is really the change I require to gain some strength and independence.

    Tonight will be about showering and organizing a little with one of my caregivers. Hopefully, after a shower tonight and moving around today, I will gain some more strength. I won’t lie, I am very nervous about getting “stuck” on the toilet due to low strength, but it will be what it will be!

    Then it’s back to my regular schedule- newsletter this weekend after taking my niece for facials for her birthday! I have a lot going on at times, and other times, nothing but crickets!

    I have a ton of follow up appointments, and eager to find out what is next for this giant kidney stone. Apparently it needs to get “blasted.”

    All of this will pass as well and then it’s back to getting ready to welcome my service dog. I am hoping the committee meets soon and I am able to schedule a community visit. I really want to see some progress in bringing this game changer to life. My 25 year reunion is in October of 2026 and I am eager to travel back to Baltimore with my new service dog and flying for the first time in 5+ years. BIG things are happening!

    Also on the agenda, is getting back into tutoring- specifically dyslexia tutoring. I have always enjoyed tutoring 1-1 with students. I use the Wilson Reading System and have a lot of materials. Please reach out to me if you have any leads in this direction.