Fiercely Independent Pam

Tag: Zeen

  • As The Puzzle Pieces Come Together!

    Things are starting to come together. I can stand without too much assistance from a walker or raised surface, I am transferring without the board at times, and I am able to get “on” my Zeen. All of these things are pointing to more independence and ability to do more tasks.

    I am truly hoping that when I attempt to use the toilet tomorrow, it is a success and I am able to stand up and off the toilet without too much fuss. More than two months with a bedpan is getting quite old for me. It is the last task for independence besides getting in an out of a car. This too needs to be mastered sooner than later, because I have appointments at MUSC that require car transportation.

    I wanted to say something that most didn’t agree with, mainly coming home from rehab unable to stand. I wasn’t really given the choice to stay, but I guess I could have pushed it, but I really felt that I wasn’t going to master the task in that environment. It might seem silly, but if everyone is not on board for the same goals, I don’t see it happening. I knew I could kick my own butt and do exercises that would help me eventually stand. I also knew that being home with my power wheelchair would be so much easier for transfers and such. I believe I made the right choice and glad that I did come home when I did.

    I am thankful for my caregivers who helped me out, especially in the beginning when I first came home. I wouldn’t have been able to do it without their support and creativity. Also, they provided a giant kick in the butt when I needed it most.

    Now, the list of tasks is getting smaller and I am feeling more successful. I know the toilet is going to be a challenge, but something oh so worth it! I look forward to the day that I don’t have to clean out a bedpan!

    Life with the Zeen continues to go well. I took it out for a longer walk this morning and thinking of going out again. I love the freedom of being able to use my legs and still have security from falls.

  • I Took the Zeen Out for a Spin and it Felt So Right!

    For the past couple of weeks, I have been trying to get strong enough to be able to stand up with my walker. I started this process in rehab and never quite finished. I was much more comfortable and motivated at home. All this work was for a very specific purpose- using the Zeen.

    Yesterday, I was able to stand with my arm lift chair at a “regular” height, which I counted as a major victory. It was also a sign that I was ready to try my Zeen. As a side note, I have been wanting a Zeen since I first saw them about a year ago. I tried to get insurance to cover the cost, but it wasn’t going to work. So I purchased my own Zeen. I was so excited on delivery day, but God had other plans for me and I landed in the hospital with sepsis.

    Fast forward to today. I was able to stand up in my arm chair an use my walker to get in position with the Zeen. I figured out the “controls” and in a short bit, I was navigating around my living room and kitchen. The carpet made things extra difficult but a few more times, my legs should be up to the challenge.

    I was so proud of myself for getting into the Zeen and navigating around. It was a goal In set for myself and it feels great having achieved it!

  • UTI’s, Antibiotics, Standing, and ,More, All Good Things Happening

    So, it finally happened. My UTI came back with a vengeance. I started having symptoms yesterday and it got bad overnight. Luckily, my primary care already had sent a urine culture out so we know what we are dealing with an what antibiotics are a match.

    I have a call into infectious disease and hopefully the antibiotics won’t be too expensive.Last time they were $3000 which is crazy!

    I had all sorts of trouble calling the infectious disease doctor, but I finally was able to leave a message and the receptionist called me back and will call me back again when the doctor gets in from the hospital.

    Hoping this round of antibiotics clears everything up, as there is nothing more annoying than having a UTI. I am pretty sure the antibiotics will be via IV and not oral, but just hoping they aren’t too expensive.

    In other news, I did great today with PT standing up about 99% by myself, which is a huge improvement. It’s also not a scary for me. PT/OT and I created a calendar for this week to keep trying to stand and hopefully even try some pivots.

    I am so eager to get to the point that I can use the Zeen, but I’m not there yet. I am thinking I will be using it in the next two weeks.