Tag: Don’t Let the Hard Days Win!

  • Having a Tribe:Family, Friends, and Staff, Oh My!

    Well, I am back inside- not the big house but the hospital-Again! My blood pressure, which usually runs low is through the roof, I called an ambulance when it reached 250/100. Nothing cardiac going on, but still not able to figure out what is causing the high BP and chest pain. In the meantime, I was pulled off all my meds that could raise my blood pressure, mainly my steroids that I take for adrenal insufficiency. Being off of them is making me feel pretty crappy. That coupled with needing a foley catheter again and continued pain, has me searching for some positives.

    I found hope in a great place- mainly what I am now describing as my “Tribe.” These are the people who together we help each other out and just make things happen. I could not survive without my tribe. My new friends at my community who, despite their own disabilities come visit me with cookies in hand and are available to hear me vent without judgement. My tribe includes the caregivers and employees at my community who do amazing things like look after my plants, or bring me the medications I didn’t bring with me.

    They are all there for me and I just hope that I am always there for them as well. I guess my biggest piece of advice on finding your tribe is to be open to help from anyone and everyone who is willing, you never know who is actually going to be there for you. Likewise, you need to show up for your tribe, be a friend, and most importantly listen to them!

    It is equally important to consider and recognize those that are NOT in your tribe. Those that gaslight you into thinking that your symptoms aren’t real or blame you for your conditions and even those that try to offer advice sometimes. This is a hard pill to swallow as sometimes those that you have to recognize as not part of your tribe are the people you desperately want to be your biggest cheerleaders. People’s lives are busy and we need to recognize that. Often, just like not blaming a person for their chronic illness, we need to respect that life is messy and we cannot blame people for not being part of our tribe.

    The bottom line is that it still hurts when someone can’t be there for you, or when you can’t be there for them. Relationships are messy and just because someone can’t be part of your tribe, doesn’t mean that you can’t like/love them. Our tribes change almost day by day, but relationships with friends and family always remain.

    I am so thankful for my past tribes, and in a really special way, my current tribe. I hope and pray that I am a member of standing in other people’s tribe by giving and showing up for them. A cookie in hand goes a long way.

  • Till our next adventures my friend (ten years ago)…

    I have a love/hate relationship with Facebook Memories. Each morning, I usually check to see what memories are posted for the day. Usually they are filled with events that I barely remember: a crazy day at school (those happened a lot as a principal!), silly quotes, weather updates, etc. Other times, they are reminders of amazing times I spent with friends or family, and sometimes they are memories that sting a little. Things like reminders of days spent with wonderful people that have left this earth, hard days spent at work, medical happenings, or events that changed the world, all leave me with some pain. I was up early this morning and checked my memories and realized ten years ago, I escaped and made one of the biggest changes in my life.

    In 2010, my (the) school, where I not only learned what it meant to be an adult, but where I learned to love a community was closed forever. A decision that was out of my hands and control. This event shook me to my core. At the time, I thought that personally, I was doing ok- I landed heads up in another school as principal, my colleagues were finding employment opportunities, “my kids(students)” and their families were finding other schools as well. Change after all is hard, but not impossible. Little did I realize that this change began chipping my foundation, confidence, and all that I believed about my faith, my personal strength, my vocation, and my support system.

    Years 1-3 at the new school were a blur of emergencies, great people, curriculum work, and amazing events. I truly was becoming an agent of change- for better or worse. I made mistakes along the way, but I truly felt like we were “rocking and rolling.” It was hard work, but I was never afraid to get dirty and jump into a mess in order to clean it up. The hours were long, sometimes 60-80 a week, especially when you included work at home and the work was frustrating and lacking support. Looking back, I was in an impossible situation. At the same time changes at home were happening too. My stable housing situation broke apart. My housemate of the past 10 years moved back to her hometown and other friends were getting married and having kids. In someways, me- the change agent, didn’t see the impact of these changes and felt blindsided.

    Years 4-5 were lonely, it felt at times like it was “me against the world.” Sure, I had amazing friends who showed up at the ER at 3 in morning if I needed them, and there was wonderful family visits, and births of nieces and nephews, but most of the time it was me, alone with my doubts and anxiety that tore my chipping foundation, confidence, faith, vocation, and support system into shreds. The harder it got, the more I withdrew and began a cycle that I couldn’t control. I let troublesome thoughts invade my head, my chronic overthinking became the norm, and I was completely out of sync with myself. Looking back, there were signs- I wasn’t eating right, I clung to things I could control like my new habit of running and became almost obsessed with these things, I stopped seeing friends and family. I pretended that everything was all right and convinced others and myself that I was ok too. Things were NOT ok- tasks at work weren’t getting done, relationships were a mess, and stopped reaching out to my support system. I was rapidly coming apart at the seams and the more that happened, the worse it got. I made a living hiding from everything that was happening, I ran more, slept more, and began behaviors that I didn’t recognize in myself, including self-harm.

    My feelings, weren’t my own- I was numb and totally disconnected with anything that looked like my life and then I hit what was rock bottom. I thought I was pulling myself together as I began making plans, but really these plans were dark, scary. and oh so private. Questions like, how many pills of this prescription did I have and what will I tell people happened to my leg, arm, or God-forbid they see my stomach (these were always dumb answers), and would anyone notice if I wasn’t around became the norm- sometimes being the only thoughts I had. The more I welcomed these thoughts, the less I accomplished at school or home, phone calls to friends and family stopped. I knew something had to happen, but totally numbness took over.

    It was a cold night in November and I remember that I couldn’t stop or control the feelings and thoughts, I couldn’t or wouldn’t reach out to anyone, after all these were my problems and I was supposed to be able to solve them. In a rare moment of clarity, despite the raging anxiety attack, I drove myself to the ER and presented with my physical symptoms. I was treated and almost released, when I took a chance- I told the provider that I was feeling unsafe and thought I could no longer control my actions. I showed him my physical scars and injuries and shared some of my deepest thoughts; by the grace of God, he listened to me and believed me.

    What happened next was a giant blur or losing complete control- the “strip” search, the phone call to my brother, losing my always connected, always on cell phone, the constant supervision, and mostly the tears. I had never felt more alone before. Then it happened- admission at a mental health hospital. I can barely remember the first couple of days, but I was so numb that I didn’t even or couldn’t even call into work. I stayed awake for over 48 hours pacing the halls, room, and barely talking to anyone. The days eventually became night and sleep eventually happened. The days, with A LOT of work became brighter, and I met some amazing people, who like me, were clinging to anything and everything that helped make sense of their current situation.

    The medical providers desperately tried to get me to believe that I was more than my failures. Some days I believed it and others not so much! We made a plan for discharge- back to my apartment, back to being alone with my thoughts, back to school, after all in was only a couple of weeks until Christmas break. The hardest pill to swallow was the conversation with my bosses: the superintendent and Pastor, both of which, were kind, understanding, and Christ like to me during this time. I reached out to friends to help prepare me for my new normal. There were plans: for my meds and keeping only enough on hand, for sharps, and for emergencies. I now clung to these plans. I planned for every minute of my days and nights, as long as it was planned for, I could handle it.

    Unfortunately, being a school principal doesn’t allow for only as planned action and activities. Despite the intense therapy, medications and support, I quickly became overwhelmed again and ended up back as a patient in the hospital. This second admission was longer, deeper, harder, and is where I made two important decisions- that I would not be returning to school, and that I needed to make a major change in my living situation. My friends and family that were aware of what was going on, were incredible- it killed me not to tell others what had happened and what was going to happen, but I, for the first time ever, was placing my needs before others- and to those of you that I left in the dark, I am sorry.

    With love and support, I made the decision to move in with my brother, John in Myrtle Beach. I had no idea what I was going to do, but I knew that he and his kids would keep me busy as well as my continued treatment. I believed that I would never see the inside of a school again. I, for the first time in my adult life, believed that I would never step foot in a church again and stopped so many aspects of my life. My world was so small and fragile. Then, in a moment of chaos with my sisters in town, I received a bizarre voicemail from a Pastor in the area asking if I had any interest in applying for a principal position in a nearby Catholic School. “Spoiler Alert”… I landed the position and fell in love with a little school, great parish, and rediscovered my faith, confidence, and met some super people along the way! Unfortunately, this story didn’t end as planned and my health got it the way more times than I can count. But that too, is documented in Facebook memories!

  • Plant Mom

    When I moved to my current living situation, I quickly appreciated my wonderful patio walkout. It my semi-private, small oasis that fosters a new hobby-being a “plant mom.” Through the winter I dreamed of what could be- still too cold to plant anything but would spend sometime each morning basking in the morning sun.

    During winter I also decided to embrace some indoor plants. I found a great seller of starter plants on Etsy and ordered a few from plants.com as well as being gifted a few. I got a great plant stand from Amazon that not only looks good, but has built in grow lights for the dim darkness of winter. I tended to this plants and almost all are doing great! I looked for plants that are dog friendly (always trying to plan ahead for my service dog), as well as air purifying (my favorite for this is my snake plant).

    Fast forward to early spring and my determination to get my patio ready for the warmer- growing friendly weather. I did a lot of research to find the perfect chair (from Outdoor Nook) and I am so happy with it! Then came the research and purchase of a wheelchair friendly raised flower bed (found on Amazon). I wanted something on wheels to be able to bring in during the winter. I love my choice and it checks off all my boxes! Next, I asked a good friend to bring me to Home Depot to purchase some plants- got all sorts of things, with my favorite being my little potted lemon tree, a tribute to my dad and his lemon tree he used to grow lemons to make lemoncellio. All my plants are doing well with the exception of my lost strawberry plant (should have left it in its pot and not planted in the flower bed). I’ve had some help from caregivers and friends with planting and watering, especially when I was in the hospital or recovering from multiple surgeries and couldn’t lift my watering can.

    Yesterday, I spent a few hours “deadheading” and cleaning up my plants, some are struggling a little with the current heat situation and others are thriving. Hopefully this attention will benefit the plants and they will be thriving soon! Today’s goals are to spend some attention on my indoor plants and get them into great shape for the future.

    I share all this to remind myself and hopefully others that being useful to someone or something is so important. Purpose in life helps keep you grounded, feeling secure, and give you motivation to keep going and not let the hard days win! Find your passion- it’s so important to give your life purpose, especially when dealing with disabilities or health struggles. So often we are caught in what seems like a never ending cycle of medical appointments, bad news, and pain that we can’t see the solutions. Giving your life purpose helps keep all these things at bay.

    Included are some but not all pics of my plants that make me a proud Plant Mom!