Fiercely Independent Pam

Category: Health

  • Trials and Tribulations of My Bladder- The Latest Chapter!

    My bladder is quite obnoxious! After my hysterectomy last April, I struggled to urinate. I was told that it was a “Floppy Bladder” and would not be able to fully empty without the assistance of a catheter.

    So, I learned how to self- cath and actually got quite good at it. Fast forward to January when I was hospitalized for numerous things including a very large kidney stone, a UTI, and a picc line infection. When I got home I required the use of a bedpan and slowly relied less on self- cathing. I thought my bladder was finally waking up and I would be cured.

    The fun only lasted a few weeks because I began retaining urine again and having to cath to be able to fully empty my bladder. In the last 24 hours, I am completing a voiding diary where I chart all this liquid I take in, and everything I am able to get out via urinating or self- cathing. I will then send the voiding diary to my doctor and we will meet to talk about it.

    The biggest challenge right now is that I require a riser on my toilet so that I am able to stand up from the toilet. This riser greatly diminishes the room I would have to self- cath and isn’t really possible over the toilet. I tried to get up from the toilet without the riser and it wasn’t possible, yet!

    I am curious about what the next steps are for my obnoxious bladder that gave me false hope. Until I meet with the doctor, I will continue to brainstorm solutions and rise to meet these challenges!

  • Achieving Goals: Its About Time!

    I have always been a goal oriented person. I like to set goals and work to achieve them. This worked for getting into college, completing a half-marathon, and achieving career goals. I am stubborn almost to a fault and that stubbornness is what makes me persevere through trials when attempting to reach a goal.

    Last fall I wrote a document I called “Why Not Me?” that outlined my 5-10 year goals. I am chipping away at those goals by making smart decisions and working hard. I am determined to make it happen.

    One of the big goals is to befriend/acquire a mobility service dog. This is requiring more patience than I ever imagined, but I know deep in my heart it’s going to work out the way it should. Somehow, someway, I will be sharing a bed with a big lab that loves to work and play.

    Smaller goals keep me going too. Right now I challenged myself to complete the 1/4 mile loop around my building with the Zeen by Easter. I have already completed half of it so I believe I’m in good shape to achieve the larger goal. I really love the Zeen and all that I am accomplishing using it.

    Next steps include getting back on the Nustep (bike) and getting in an out of a car. Both will be a challenge but put me on the positive side of normal activities. At sometime soon I would like to remove the toilet riser as well so that I can get used to a normal height toilet and not be surprised when I am out of the house.

    Behind the scenes, I am also working on financial goals, I have recently finished my Medicaid application. I am also using an AI tool to help me manage my money and try to create an emergency fund as well.

    All of this requires a lot of time and attention, but lucky for me, right now that is something I have a lot of. It’s very unlike me to put myself first, but I recognize that is needed to achieve my goals, both short term and long term.

  • Independence at Last, Well, Sort Of.

    I am truly enjoying my independence to be able to stand and even walk some. I am growing more confident and have given up the transfer board completely at this point. I even have been experimenting with the toilet and standing long enough to undress and not lose my balance.

    I need to keep in mind that I still have a lot of work to do. Balance is a major concern, as is standing tolerance. I am still super wobbly when standing and usually have to hold on to something to keep my balance.

    Without completely oversharing, I am also going to begin the transition out of disposable briefs and into reusable “leak proof” underwear. I am trying a brand call “Everdries” and will hopefully meet my needs and be a whole lot more comfortable, than disposable briefs.

    My last major task is being able to get in and out of a car. I want to practice this before I need to use this skill to get to MUSC. I have a couple of weeks so I am thinking there will definitely be enough time and it might even be a “non-issue” if I get strong enough by then. PT has also offered to help me achieve this goal.

    As far as the Zeen goes, I set the goal that I will complete the 1/4 mile loop around my building by Easter. I think I am going to go outside today with the Zeen and see how I do on the sidewalk. I am excited to meet this goal.

    I also want to get back to using the NuStep, even though I am using the Zeen, I think adding the Nustep back in will be a great plan. I have to figure out how I am going to transfer to the NuStep as well as getting up from it because it is kinda low.

    Rehab is still my first priority in all things right now. I still need to grow stronger, gain better balance, and be able to get up from lower seats. I truly appreciate all of your good thoughts and prayers to make this happen for me.