Author: Pamela

  • Manifesting, Is it Just Good Luck?

    The English language is tough. So many words have various meanings that just don’t make sense. Take the word, manifest or manifesting, for example. Are we talking about a ship/plane’s document, willing something into being, or seeing something differently? It’s a difficult thing to master for sure.

    Back to manifest or manifesting, I’m not sure if its my stubborn personality that has been called bulldog- like, or my never ending patience to see something through, but I believe in the power of manifesting something into being. My father used to comment on my ability to make something happen though nothing sort of pure will and a LOT of hard work.

    When I was in high school (way too long ago), I made a habit of taking classes that I really had no business taking. Mostly AP or honor level classes. I knew that I wasn’t ever going to be an “A” student, so I might as well take the harder classes and work harder for my “B”, or sometimes worse. It was a system that paid off for me in more ways than one. First, I had better teachers, most of which figured out my plan and supported it. Second, I was exposed to better curriculums that required critical thinking. Third, and most importantly, I got some general education credits out of the way to allow me to take a ridiculous course load in college.

    It was during my first AP class, European History, that I earned my title as a Bulldog. I remember it vividly, my teacher sent me a note (a real paper note through the mail) that simply said “A 3!!! You are a Bulldog!!!” The number 3 was my score, it meant that I would get credit for the course in college and throughout the school year it seems that a 3 was WAY out of reach for me. I didn’t know it at the time, but it taught me that I can manifest something into being. It didn’t only take my brain to work, but a lot of hard work and patience.

    And so it went for many more classes. There was honors chemistry where I know the only reason I passed was because I promised my teacher that I would never torture another chem teacher by taking another chemistry class. The joke was on me when I ended up roommates and best buds with a chemistry major!

    Fast forward beyond high school and college. If I set my mind to something, it happened. It was never easy, but I successfully manifested things like becoming a principal, running a half-marathon, attaining enrollment goals, fundraising for specific causes, adding programs, losing (and then gaining) weight. If I put my mind, heart, prayers, and work into making something happen, it did. These were great times.

    Except when it didn’t happen. No amount of hard work, prayers, or manifesting could stop my school from closing or getting sick, or losing my parents. It’s taking me a long time to realize this is where I gained my fuel for manifesting other things into being. The unsuccessful attempts drive me to be more patient, say more prayers, and work harder.

    I am ready for success to happen to me again. I learned to dream and put good thoughts back into the universe. The bulldog is awake! Today, I received positive news on something I am working super hard at manifesting into being- think wet noses. I am calling this the “Why Not Me?” phase/era of my life. (Thank you Kelli Gerardi) Good things can happen to anyone, so why not to me? Some people get the fairy tale endings, why can’t I get it too?

    I’ve learned that luck has nothing to do with manifesting something. It may help, but hard work, prayers, and patience will win every time!

  • Appearance Matters: When Chronic Illness Steals Your “Look!”

    No matter how hard I try to pretend that my appearance doesn’t matter to me, I always know it does. During the pandemic, I was very sick. I spent more time in the hospital than home and had many rounds of tough medications and treatments. All of this caused havoc on my body and its appearance.

    I was on steroids constantly and not just a little Medrol pack or short course, but iv and high dose Decadron for months at a time. At one point I gained so much weight, so quickly that my stretch marks began to pull apart and tear the skin. The steroids allowed me to continue breathing and it was stressed to me that I needed them. I spent half my day on a non-invasive ventilator and sometimes the whole day. All of this took an amazing impact on my appearance.

    When you add on the complications of the pandemic- not really going anywhere or being able to get to a salon, the results were dramatic to my appearance. Besides the stretch marks, which I continue to battle with every day, my hair was thinning and falling out. My once thick curly/frizzy hair became baby fine and a simple act of brushing it or washing it, led to major loss. My eyebrows thinned out as well and became almost non-existent. I hated my appearance, but also was so proud of myself for surviving.

    Fast forward to October 23, 2020, I made myself an appointment at my favorite salon for a hair cut (shape) and color. I remember it was surreal to deal with the rules of the pandemic and wasn’t able to have it blown out or dried. A simple visit became a statement that I was going to “win.” Treatments weren’t going to hold me down and hold me back. I radically changed my appearance from a worn down- sick person, to a warrior, determine to fight my demons and not let the scars win. I chose to go red and loved the color change.

    Little did I know that I would eventually have to shave my entire head for brain surgery. (Click here for more about that). My hairdresser at that amazing salon was with me through it all! She is a perfect example of a hero without a cape.

    I will continue to not let the hard days win by ignoring my appearance when necessary, but celebrating it when possible. Today, I continue to fight with my hair- but love the curls God granted me and the wild, unpredictable nature of having curly hair.

    As for the stretch marks- I am at a loss. I have decided the best thing to do is embrace them as battle scars. They stand as a testament to all I have won! While not the convention of beauty, I find them amazing- a statement of what our bodies can do for us!

    The result of my beauty treatment at the salon- notice the awesome color, but also the crazy thin hair and hairline.
  • An Awesome Accessibility Adventure in My Backyard!

    So, it has been a hot minute since I’ve posted. I’m learning that I need to take a day or two off from all things digital each week to help rejuvenate my creativity. I had an amazing weekend with my college roommate and her wife! It is amazing to be with people that you know do not see you as a burden or get frustrated with your mobility/health needs. Accessibility helps tons too! I wasn’t sure what direction this post was going to go, but I realized that I wanted to share my adventures in accessibility more than anything.

    I am still non-weight bearing because of my hip injury so I wasn’t sure how we were going to get out an about this weekend. Friday and Saturday were filled with great food adventures and quality time spent together. We managed to get out by using my manual (non-custom) wheelchair. Relying on Lyft rides to get where we wanted to go, I was pleasantly surprised that the drivers, with only one exception, helped to put my wheelchair in the trunk. While wheelchair accessible ride-shares are not available in my area, their help made us getting out possible.

    We had planned to go to a local kite festival on Sunday, but a coastal storm canceled those plans. I already hired a wheelchair accessible van for Sunday so that I could bring my power wheelchair out for the event. We switched gears and decided to go to the mall.

    I realized I haven’t been shopping at a mall in at least six years. It was great to get around and be able to do some in person shopping. I found the mall and most stores to be very accessible. Most paths were wide enough for my wheelchair and people were friendly and helpful. It helps that this is still what I would consider a “newer” mall and built with accessibility in mind. The bathrooms were great and even had many “family style” restrooms that provide more space and adult friendly changing tables.

    The real excitement was being able to go bowling at the “fancy” high tech bowling alley at the mall. We checked in and inquired about accessible lanes and without a blink of an eye, we were set to start bowling. I used a ramp type thing to push the ball down the lane while staying in my wheelchair. There was a learning curve for sure and we even figured out how to put the bumpers up for me (and only me) to compensate for the learning curve. There was no fuss about it being accessible and my needs didn’t hinder my friends playing either. This is true accessibility!

    The only drawback to all this accessibility was the cost. Wheelchair transportation is not cheap and having no other options is tough. We must fight harder and advocate for total accessibility by having transportation available for wheelchair users. There are noble people and local organizations that are trying to make this a reality. What options exist by you?

    I loved my adventures with my friends this past weekend. Accessibility allowed me to fully take part in the fun! My hope is that everyone who needs access to fun adventures, which is everyone, gets the chance to make this a reality. This needs to happen not just for special days, but as the norm.