Author: Pamela

  • When an Uber Ride is More Than Just Transportation!

    Sometimes an Uber ride is more than transportation. Yesterday, I ordered an Uber to go get my Actemra infusion at the rheumatologist’s office, which is only a few miles away. I waited with my rollator and did what I always do when the driver says hello- “Are you able to help me with my rollator?” I asked. She quickly pointed to her handicap parking hangtag and said, “Sure, we handicappers need to stick together!” I knew this was going to be a good ride.

    I got in and quickly exchanged niceties which quickly turned into a full blown conversation about being disabled. We didn’t share diagnosis’s or specifics but both felt like members of a secret club that only those on the inside could understand. We talked about family support, strangers asking questions they had no business asking, and the loneliness of being disabled.

    We shared heartbreaking times that we missed out, or worse, pushed ourselves so hard we ended up in bed for three days afterwards. I think it was the first time I talked with someone who understood my life in person and not online. It was so refreshing.

    She shared and showed me that she, like me, had a fistula and sometimes people think her fistula is a scar from drug use. I told her I never had that problem, but stored that piece of information in my head for later. I offered some advice about mobility devices, especially about my Zeen.

    Unfortunately, the ride was quick and we were saying our goodbyes before we knew it. I thanked her for the conversation and told her it was a breath of fresh air! She seemed to totally agree!

    I no longer drive and depend completely on others to get around, except where my wheelchair brings me. I use buses, Uber, and private transportation companies. I find most of my interactions with drivers to be positive or at least neutral. This trip was positively amazing! You never know who you will meet! I hope I offered as much to this driver as she offered to me!

  • Seeds of Happiness: Spreading Some Smiles and Joy!

    Seeds of Happiness: Spreading Some Smiles and Joy!

    About twenty years ago or so, I was shopping in a little store in Chestnut Hill, Pennsylvania, and found something unique. It was basically a lump of clay that was brightly colored and had a big smile! I picked one up and read the story that came with it and fell in love. The business was called Seeds of Happiness and they exist to spread joy and happiness. I was sold, literally and bought a few for myself and to give out. I still have my original yellow smile and it sits on my dresser.

    Fast forward to today and my small collection that incudes a pumpkin, and lots of opportunities to share a smile with others. As I launch my second series “The ABC’s of My Favorite Products”, I decided to include Seeds of Happiness as my “S.”

    I wrote to Mark, the genius behind this idea and asked him if he could gift me some smiles to make people’s day! He was more than generous and sent a great package that made my day! I decided to start sharing my new smiles with those I interact with! The bulk of my interactions are in my community or with healthcare workers(who really need a smile).

    I decided also that I wanted to document the interactions by pictures or even better would be by video. These interactions would then be shared on my socials and with all of you! I know I should probably be going in some sort of alphabetical order with my products, but I felt a God nudge and started with the Seeds of Happiness Smiles!

    My first smile was shared with none other than a Pam! She was my phlebotomist at the GI office on Thursday. I received some not great news and she was just a breath of fresh air and was determined to get my blood in spite of being such a hard stick. I asked her if she could help me with a “project”, and she agreed. I presented her with a smile and we decided to take a picture of her with her new smile!

    Mark was so generous that I have lots of opportunities to make others smile too! So hold on to your hats and be prepared for videos and pictures. If you are looking for a good gift for someone check out the website for Seeds of Happiness.

    GO AND SPREAD SOME KINDNESS!

    The Front of the Story Card!
    My new friend Pam, with her pink smile!

  • Chronic Illness and Missing Out on the Good Things!

    Chronic Illness and Missing Out on the Good Things!

    So, my medical issues caught up with my social life, again… Chronic illness means that sometimes, often, you miss out on great things.

    Today is my niece’s high school graduation party. The one she planned herself and I am so proud of the young adult she is becoming. She has her mind focused, Jesus in her heart, and BIG plans for the future. She is one of the big reasons I live here, I want to be part of their lives and watch them grow.

    Over the last week, I was hospitalized for six days. I’m dealing with some major GI issues and still on a pretty restrictive diet. That coupled with the heat/humidity is a recipe for disaster and the last thing I would want to do is take attention away from her on the big day by needing medical attention. All of this to say, I will be staying home and not attending.

    Being a grown-up means making decisions that are in your best interest as well as the best interest of those you care about. Its not about what is the most fun or doing what you want all the time and that tends to be one of the hardest pills to swallow with chronic illness. I can deal with the procedures, doctor appointments, medicine’s side effects, and more, but missing out on the BIG things is just so hard.

    I know that my niece and the rest of the family understands- they are great about it, but it doesn’t make my disappointment any easier. I will find another way to celebrate my niece (in air-conditioning)and life will move along. I will eventually just chalk this up to my life right now and realize that making the right choice is always the better choice.

    I hate sounding so “down” and I really am not. I just think it’s important to point out that everything isn’t always sunshine and rainbows! Chronic illness is a hard thing to battle every moment. You are juggling so many different things and every day, or even every hour is different. You just never know what is going to happen. So, my fellow chronic illness fighters- keep the faith and good fight. For my family and friends- thank you for your understanding and knowing its not about what I want to do.