Tag: truth

  • The Ultimate Decision: Finding My Purpose Beyond My Career

    I have a love/hate relationship with Facebook memories. I love seeing pictures or updates that include how little my nieces and nephews once were or incredible days with my friends. Then there are the memories that sting: hospital visits, failed operations/procedures, rough days at work, etc. There is a third category of memories, life changing events/ announcements.

    Today, the Facebook world reminded me that six years ago, with the help of my amazing doctors, I announced that I would be stepping away from my education career to focus on my health. I remember it took me a couple of weeks to get the courage to tell others. The reality was that I already knew I wasn’t going back to school, there was no way my body could handle the workload. Nevertheless, I posted the decision that not only would I not be working anymore, but that I was moving to Florida to live with my parents.

    Since I was a little girl, I knew I wanted to be a teacher. I tortured friends and family with the never-ending need to play school and be the teacher. I loved chalk, alphabet magnets, workbooks, and of course reading! I never thought of any other career path and when I realized that I could be an administrator, I wanted that even more.

    So, there I was, unable to work in a school, or really anywhere, packing up my dog and all my belongings, headed to southwest Florida. It was summertime so the sting of not being in a school wasn’t there yet and after all, it was going to be a short stint, just until I could get back on my feet and be healthy again. What wasn’t there to love? I would live in a great house with my wonderful parents and figure everything out.

    Then August came, I didn’t have to start hoarding school supplies, I didn’t buy a new planner or new outfits, I simply existed. Each day was like the one before, no students to make it different or exciting. I was a lost soul. Through the help of an incredible therapist, I worked my way through the loss of my career and everything that I thought was connected to it. Each season stung a little less and I found new purpose.

    At the same time, my parent’s health, especially my Mom’s, started to decline. Her memory issues became prominent and my Dad required more appointments and support too. I was running from my appointments to theirs. It became a rhythm of sorts, doctor appointments, medication administration, spending time together at things like car shows or grabbing a meal out on the town. I loved this more simple life.

    Then Covid hit, changing everything. We were stuck together and still needed to get medical care, especially me and my frequent hospitalizations. To this day, I’m not quite sure how I would have been by myself (well with Sofi) though lockdown and I have no idea what my parents would have done if I wasn’t there. My dad perfected his homemade apple pie, mom continued to decline, especially with a bad fall that required brain surgery, and I kept focusing on getting “better.”

    Then the hard days hit- Dad was struggling, the cancer was everywhere and he was showing signs of needing to give up. Mom’s time in rehab after her surgery left her as a shell of her former self. She was becoming a lot to handle at home and required constant care. I had multiple new diagnosis’s and was in and out of the hospital receiving treatments.

    Honestly, I don’t remember too much of the day to day events, which is a good thing because they were tough. As a family, we began making plans to move Mom into a nursing home, a decision that was not made lightly. Then Dad was in the hospital and it didn’t look good. Shortly after we moved Mom, dad took control of his own path, we lost him less than a few weeks later.

    Mom continued to live at the nursing home and I visited pretty much every day. I brought an iced cappuccino and munchkins and she would tell me stories about visiting with her high school boyfriend. The rhythm became new again. I continued to decline in health and required my own assistance with everyday things. I met wonderful people that helped me find my independence again.

    Purpose is not just our career goals. It can be so much more important. Through losing my career, I found an incredible purpose to continue to serve. My family needed me at that time and I would have lost the chance to make incredible memories if I wasn’t pushed to put myself first and stop working. You never know what crazy road God puts you on. It is our job not to question, but believe.

    This hangs in my bedroom as a reminder of my “real” purpose!

  • Hurry Up and Wait…

    My dad would say this all the time, especially when dealing with the medical field. Being in the hospital is a waiting game; you have very little control over when something is going to happen. Nevertheless, you always seemed rushed.

    I’ve been in the hospital, this time for a week now. When I came in, they wanted to do a lumbar puncture to determine what could be going on in my head/shunt. The doctors attempted several times bedside in the emergency department, but had no luck. Lumbar punctures are never fun and always pretty painful. The decision was made to repeat the attempt with the help of interventional radiology (IR). The problem with this is that IR would not do the lumbar puncture until my blood thinners were held for at least five days. So, I waited.

    Five days later landed me right smack during the weekend, where there is a skeleton crew for IR. So, it being Monday, I believed that I would be scheduled today. Around four o’clock, I figured it wasn’t going to happen and I was bumped to tomorrow. My nurse confirmed this and a whole lot of “Hurry up and wait” took place.

    We will try again tomorrow and with any luck it will be a success and I will be able to go home afterwards. Having a shunt and having IIH means that lumbar punctures are always on the table. I came in with a severe headache and blurry/double vision. These are troubling signs of possible papilledema or swelling of the optic nerve in one or both eyes. This can lead to permanent vision loss if not corrected and treated.

    I’ve had several rounds of dealing with papilledema and each time my previous eye doctor would remind me of the seriousness of the issue. Unfortunately, an eye exam is a tricky thing in the hospital. It usually needs to be done as an outpatient because of the necessary equipment and most hospitals don’t have ophthalmologists available beyond phone consults.

    I will be sure to follow up with a local ophthalmologist and if necessary, my neuro- opthalmologist at MUSC. More opportunities to “hurry up and wait!”

  • My life as a Plant…

    My biggest hurdle in dealing with my medical issues, is not the pain, constant appointments, or missing answers, but rather the unbelief of others. Whether it is doctors, nurses, friends, family members, or even strangers, it’s so hard to deal with people who believe that there is no way I could have so much wrong with me. It eats me to my core. I know I have to deal with these feelings and I need to let people have their own feelings, but it’s not easy.

    I can handle the medical procedures, medications, and pain. I boost myself up and put on a smile along with my crazy curls and deal with what has been handed to me. I believe that it is not to hurt me, but rather teach me and help me be stronger for myself and others. I shut down and wilt when others don’t believe or think they can solve all my issues.

    Lately, my wilting and shut downs do not portray my best-self. I get upset, cry, and become very anxious. This cycle just keeps me in a place that I do not enjoy, nor does anyone around me. I will continue to work on this but it’s so important and easy to be believed. To the medical world, do your homework, my issues, while mostly invisible, are still very much real. Things like shunts, surgeries, and medications do not happen without having proven needs that are not arbitrary, but reality for myself and thousands of others. To my friends and family, it sucks that I am not reliable anymore and that I need help. Please always tell me if I am asking too much or you are not able to help. I promise it will not change our relationship. Ghosting me or not explaining the distance, hurts and will impact our relationship, which I hope neither of us wants. To strangers that feel they need to comment, I will simply let you believe what you want, your comments sting, but frankly, I don’t have the energy to fight for a non-existent relationship.

    All of this might seem a little cold or not like me, but it’s self-preservation at this point. I’ve chosen to subscribe to the “Let Them Theory”, in which I recognize that I cannot force or make anyone do anything, only people can change if they want to. It has been a freeing practice, and has helped me not to stress about relationships.

    For now, I will recognize that my body does not look like a temple, but that doesn’t mean I don’t want to treat it that way. I really am the lost plant on clearance begging for a little water, sun, and love. I will push through the ugly soil, but just need to believed that it is possible. My scars and experiences tell a story that I am proud of.