Fiercely Independent Pam

Tag: stupid bladder

  • I’m Home and Eating in The Dining Room Again Time To Share All that Is Going On!

    Time for a new blog entry I am so Close to making something happen and celebrating it! I found out that my blog isn’t reaching as far as I thought it would. I hope you are able to share it with others but giving it a like and resharing or reposting would be even better. I really need to grow my audience.

    Also, If you know of anyone that might need tutoring services, especially Dyslexia services, I am open and looking to book! Please Share my information with others. I have 25+years of experience and consider myself quite good!

  • Wrapping My Head Around The Idea That I’m Not Going to Be Dropped and Break My Leg Again: I Can Stand!

    I have a mental break that I am going to fall and break my leg again. I am trying so hard to get over it, but it is still there- past trauma rears its ugly head at the worst possible times. I want nothing more than to stand up and have the strength to stay there and take a few steps. This is mission critical to be able to stand and walk again. I know I play the role of someone who is tough and able to handle so much, but when my brain plays tricks on me it’s so much harder. When I was in Florida and learning to walk again, I had an unfortunate incident where I was dropped by a staff member and broke my leg.

    Then in October, I had my accident with getting run over by a car and breaking my leg once more. So, I am struggling with my confidence to say the least. All of this coupled with getting stuck in a few bathrooms and needing the fire department to lift me out of some bizarre situations, has left me more than vulnerable. It does amaze me that I am not embarrassed but just need to do what needs to be done!

    I am so fortunate that I had amazing primary care from Your Health- Lindsey was able to work magic and get me registered here at Encompass, which is exactly where I am supposed to be. I am willing to spend as much time as possible to get this right, even if it means rescheduling important appointments down at MUSC.

    I’ve also been dealing with crazy bloody noses again. It seems that I just keep dripping blood and trying not to make a mess. I appreciate that they are giving me full size tissue boxes and tissues instead of the little packages. I will eventually get back to the ENT and figure out how to control this! It seems that trying to stand also makes my nose bleed.

    I will try again maybe today, but definitely tomorrow. I know I can stand and take a few steps. I am also trying to keep track of my weight, which is hard to do, but I’ve managed to step up on the “kitchen scale” each day. I am gaining weight, instead of losing, but considering the experience, I am ok with that.

    I totally miss my electric wheelchair and all the freedom it brings me. I look forward to getting home and using it again. I feel like learned a lot about it and how it can help me out in even bigger ways.

  • Home and Almost Reset! Just Missing a Whole Lot of Strength- But My Heart Is Ready!

    Well I made it home! All safe in my little corner of the world. I even had a wonderful lunch catching up with an old friend, who will hopefully help me find some tutoring gigs too! Even managed to open some packages and get a little organized. Needed the help of lift and assist from the fire department, and they were more than wonderful!

    I was NOT prepared for how weak I actually am now that In am home. I really can’t stand on my own, and terrified of falling. So, it’s back to my “roots” using an old fashioned sliding board to transfer out of bed and into my wheelchair or arm chair. I need to get stronger, but for now, this is going to have to be how it is to be done.

    A huge thanks to my caregiver who with our thoughts together managed a small little shower last night and it made all the difference. I am so bruised up that I hope I heal well.

    Thank goodness I can self catherize anywhere because I really can’t get on or off the toilet right now- TMI sorry-

    It doesn’t help that we are supposed to get a winter storm of sorts, but I guess being stuck in my apartment isn’t the end of the world at all since I am not in the hospital anymore. Unfortunately, I had to cancel facials with my niece because I am not up to it, but I will make it up to her for sure and it will feel even better knowing I did it on my own.

    Today, begins appointments- nurse for resumption of care and hopefully the ENT as well. I ordered an Instacart order and looking forward to some new things to drink. Hopefully, I will also be able to get some organization done too. I also have a newsletter floating out there somewhere too!

    So, I move forward, carefully and intently. Looking forward to working with PT/OT again and being able to transfer without the board and being more independent again. I too will rise again, I have been down before and know what needs to happen. My biggest issue right now is to stay off the floor and in my bed or chair. I have enough new “toys” to play with to keep me busy and not exploring and going places I shouldn’t be going down.

    Other than being just so happy to be home, I am sore- especially where they put my shiny new picc line- its more tunneled than I expected, but it got me home and its able to be used for the necessary IV antibiotics that I need each day to get rid of these major infections- all at the tune of over $3000. No one ever said that chronic illness is cheap!