Tag: power wheelchair user

  • Wet Noses In My Apartment: A Visit From PAALS- We are Getting Closer!

    Today was a BIG day! I moved forward two steps in my process to attain/befriend a service dog through PAALS. I continue to be SO impressed with PAALS and all they seek to accomplish. I waited a long time for this day to come and I am so excited to share my wonderful experience. My day didn’t start out that great, as I really struggled this morning to get going. My body is dragging and I know that is because of my recent GI issues but boy, did it take a lot to get going.

    Once I got myself ready, dressed, and took another nap, I headed over to the Food Lion grocery store that I usually shop at and met up with 2 great ladies from PAALS and a beautiful, kind, and sweet dog named Monahota. She was AMAZING! We traveled around the store where she (and I) were able to learn about using my power wheelchair, hands free leash, and giving cues. She was a quick learner and made me look good despite fumbling with the right words, or forgetting to pass her treats on the side and not in front of me. She seemed proud of her abilities and confident, which I loved! It’s important to note that Monahota was brought today for her skills, and while she could potentially be my eventual dog, a process exists to select the best dog for my needs.

    I shared some of my concerns/ troubles at the grocery store (mainly the stupid refrigerator doors that make my trips extra hard) and we brainstormed some ideas to make have a dog support my goals. Monahota was also eager to show me how she likes to pick up objects and be helpful. From the grocery store we walked back to my community and even crossed the major street, she continued to shine!

    Once we were all back in the community, we walked past the dining room full of residents who were eager to see Monahota and she was very aware that everyone was “checking her out!” We then went to my apartment where she was amazingly well behaved and stay in a “down” position for the most part of the visit. My little apartment fared well, but I need to find some space for a large crate. Good thing I have help coming!

    Pictures were taken of my apartment to help with training and to give the committee a better idea of where a dog would be living. The entire time we were moving about the apartment, dear Monahota, stayed in her down position and didn’t make a peep. That is going to take some time to get used to.

    After some time, the delegation from PAALS left and began their travels back to Columbia! The next steps include the committee meeting, fundraising, speed dating to find the best pairing, and then some intensive training. Patience is going to continue to be the name of the game as this process is going to continue to take time. I recently made a bracelet that simply reads, “God’s Timing” and that is exactly what it is all about!

    I am confident that things will work out as they are supposed to and when they are supposed to, but in the meantime, please feel free to say a few prayers that I can keep the faith in this time of waiting. I also know that Monahota is going to live an amazing life transforming a person’s whole being!

    Stay tuned for the next chapter!

  • Holding it All Together- Not So Pretty, But Getting the Job Done!

    Holding it All Together- Not So Pretty, But Getting the Job Done!

    Have you ever had that kinda morning? The one that makes you think you should just run back under the covers? That was me this morning! So much happened, I’m not quite sure I will remember it all!

    Yesterday, my power wheelchair began randomly shutting off and jerking me forward in the process. I thought it was the connections and put new tape on the this morning to keep them together better. Then I charged the wheelchair. When I removed the charger and turned it back on, I got nada! No power at all. Meaning I didn’t have use of the most useful item in my apartment! I managed to finish my morning routine with my walker. I also made a phone call to the wheelchair company to have them call me as soon as possible!

    Next on the list was that my deposit that was supposed to come through to my bank account did not. Another phone call and figured out I added an extra digit to my account number by mistake! Could take up to a week to work out! Great!

    The shining spot of the morning was physical therapy where I made it 2 laps (1/2 mile) around the building in my Zeen and felt great! I created a new goal- 1 mile (4 laps) by my birthday (May 19th). This will be a HUGE accomplishment!

    Then the hits kept coming… I went to lunch using my walker and transferred to a regular chair. That went ok, but I had to stop several times walking back to my apartment because I was lightheaded and dizzy. Also, the wheelchair repair guy is booked for the remainder of the day and unable to get to my wheelchair until tomorrow afternoon.

    Tomorrow I was scheduled to have my fistula looked at through a special procedure in the OR at MUSC in Charleston. I say was because I found out that I got bumped until next week, but I guess that is still better than going there and then getting bumped! Now I’m scheduled for a 6:30am arrival! Ugh!

    So, here is where I stand: deposit coming in tomorrow, wheelchair repair tomorrow (hopefully this will not wipe out my deposit), fistula procedure next Thursday, thinking I am going to challenge myself and take my Zeen to dinner.

    Days like this is a sign to give yourself some grace. Not wallowing in self-pity, but recognizing that you are holding on with tape (and hopefully a prayer or two). I will proceed gently with myself and laugh through the unplanned moments. This is what we are called to do!

    A goose riding a scooter with duct tape- it reads "keeping it together with tape and denial"
  • The Ground Sure is Hard!

    I still can’t believe it happened! I was simply transitioning from the sink back to my wheelchair and BOOM! I went down, and HARD! I reviewed my video footage afterwards (no video of the bathroom but sound). I definitely shouted some expletives and some other unmentionables!

    Sometimes, like this time, I know I am going down. Other times, especially when I pass out from blood pressure, I simply find myself on the floor. I really want to make it a long term goal for PT that I can manage to get up by myself considering that, while I love the local fire department, they don’t need to be coming to my assistance if I can do something on my own.

    So, I am left with several bruises, Including a large one on my bottom, and some scrapes from my wheelchair. It could’ve been worse and required a trip to the ER. I know I was lucky.

    I don’t think other people realize the emotional toll of a fall. Your whole world is untrustworthy instantly. You hesitate to stand again, to transfer again, or even leave your chair or bed. It is totally more mental and physical. I have found that it requires me to challenge my thinking pattern and be willing to take the chance of falling again.

    Yes, it is scary, and yes, it is “easier” at first to stay in bed or my chair, but the show must go on and I need to try again. The first transfer is the worst and then a few hours later you are barely thinking about the chance of falling because muscle memory took over.

    No matter what, the ground in a first floor apartment sure is hard!