Fiercely Independent Pam

Tag: power wheelchair user

  • The Ground Sure is Hard!

    I still can’t believe it happened! I was simply transitioning from the sink back to my wheelchair and BOOM! I went down, and HARD! I reviewed my video footage afterwards (no video of the bathroom but sound). I definitely shouted some expletives and some other unmentionables!

    Sometimes, like this time, I know I am going down. Other times, especially when I pass out from blood pressure, I simply find myself on the floor. I really want to make it a long term goal for PT that I can manage to get up by myself considering that, while I love the local fire department, they don’t need to be coming to my assistance if I can do something on my own.

    So, I am left with several bruises, Including a large one on my bottom, and some scrapes from my wheelchair. It could’ve been worse and required a trip to the ER. I know I was lucky.

    I don’t think other people realize the emotional toll of a fall. Your whole world is untrustworthy instantly. You hesitate to stand again, to transfer again, or even leave your chair or bed. It is totally more mental and physical. I have found that it requires me to challenge my thinking pattern and be willing to take the chance of falling again.

    Yes, it is scary, and yes, it is “easier” at first to stay in bed or my chair, but the show must go on and I need to try again. The first transfer is the worst and then a few hours later you are barely thinking about the chance of falling because muscle memory took over.

    No matter what, the ground in a first floor apartment sure is hard!

  • Wrapping My Head Around The Idea That I’m Not Going to Be Dropped and Break My Leg Again: I Can Stand!

    I have a mental break that I am going to fall and break my leg again. I am trying so hard to get over it, but it is still there- past trauma rears its ugly head at the worst possible times. I want nothing more than to stand up and have the strength to stay there and take a few steps. This is mission critical to be able to stand and walk again. I know I play the role of someone who is tough and able to handle so much, but when my brain plays tricks on me it’s so much harder. When I was in Florida and learning to walk again, I had an unfortunate incident where I was dropped by a staff member and broke my leg.

    Then in October, I had my accident with getting run over by a car and breaking my leg once more. So, I am struggling with my confidence to say the least. All of this coupled with getting stuck in a few bathrooms and needing the fire department to lift me out of some bizarre situations, has left me more than vulnerable. It does amaze me that I am not embarrassed but just need to do what needs to be done!

    I am so fortunate that I had amazing primary care from Your Health- Lindsey was able to work magic and get me registered here at Encompass, which is exactly where I am supposed to be. I am willing to spend as much time as possible to get this right, even if it means rescheduling important appointments down at MUSC.

    I’ve also been dealing with crazy bloody noses again. It seems that I just keep dripping blood and trying not to make a mess. I appreciate that they are giving me full size tissue boxes and tissues instead of the little packages. I will eventually get back to the ENT and figure out how to control this! It seems that trying to stand also makes my nose bleed.

    I will try again maybe today, but definitely tomorrow. I know I can stand and take a few steps. I am also trying to keep track of my weight, which is hard to do, but I’ve managed to step up on the “kitchen scale” each day. I am gaining weight, instead of losing, but considering the experience, I am ok with that.

    I totally miss my electric wheelchair and all the freedom it brings me. I look forward to getting home and using it again. I feel like learned a lot about it and how it can help me out in even bigger ways.

  • An Awesome Accessibility Adventure in My Backyard!

    So, it has been a hot minute since I’ve posted. I’m learning that I need to take a day or two off from all things digital each week to help rejuvenate my creativity. I had an amazing weekend with my college roommate and her wife! It is amazing to be with people that you know do not see you as a burden or get frustrated with your mobility/health needs. Accessibility helps tons too! I wasn’t sure what direction this post was going to go, but I realized that I wanted to share my adventures in accessibility more than anything.

    I am still non-weight bearing because of my hip injury so I wasn’t sure how we were going to get out an about this weekend. Friday and Saturday were filled with great food adventures and quality time spent together. We managed to get out by using my manual (non-custom) wheelchair. Relying on Lyft rides to get where we wanted to go, I was pleasantly surprised that the drivers, with only one exception, helped to put my wheelchair in the trunk. While wheelchair accessible ride-shares are not available in my area, their help made us getting out possible.

    We had planned to go to a local kite festival on Sunday, but a coastal storm canceled those plans. I already hired a wheelchair accessible van for Sunday so that I could bring my power wheelchair out for the event. We switched gears and decided to go to the mall.

    I realized I haven’t been shopping at a mall in at least six years. It was great to get around and be able to do some in person shopping. I found the mall and most stores to be very accessible. Most paths were wide enough for my wheelchair and people were friendly and helpful. It helps that this is still what I would consider a “newer” mall and built with accessibility in mind. The bathrooms were great and even had many “family style” restrooms that provide more space and adult friendly changing tables.

    The real excitement was being able to go bowling at the “fancy” high tech bowling alley at the mall. We checked in and inquired about accessible lanes and without a blink of an eye, we were set to start bowling. I used a ramp type thing to push the ball down the lane while staying in my wheelchair. There was a learning curve for sure and we even figured out how to put the bumpers up for me (and only me) to compensate for the learning curve. There was no fuss about it being accessible and my needs didn’t hinder my friends playing either. This is true accessibility!

    The only drawback to all this accessibility was the cost. Wheelchair transportation is not cheap and having no other options is tough. We must fight harder and advocate for total accessibility by having transportation available for wheelchair users. There are noble people and local organizations that are trying to make this a reality. What options exist by you?

    I loved my adventures with my friends this past weekend. Accessibility allowed me to fully take part in the fun! My hope is that everyone who needs access to fun adventures, which is everyone, gets the chance to make this a reality. This needs to happen not just for special days, but as the norm.

    Getting ready to get a strike!
    Core Memory
    Need to perfect my form!
    The very cool food delivery robot!