Fiercely Independent Pam

Tag: NuStep

  • Mission Accomplished! One Goal Achieved Thanks to the Zeen!

    I DID IT!!! 1/4 mile around the building a week before my deadline! My Zeen is awesome! Not only did I manage to make the full loop, I felt better in the Zeen than ever! I think I finally managed to find the “sweet spot” for the seat and my legs.

    In addition to being more comfortable, I successfully used the cup holder and managed to find places for my keys, phone, oxygen, and even a flyer that was handed to me as I went out the door! The Zeen is just so perfectly organized.

    I love to set goals, and this week is a big week for those goals. I accomplished a big one today. Wednesday, I am going to make sure I can get in and out of my niece’s car in preparation for our adventure to Charleston to see the ENT at MUSC for my sinuses on Thursday. I have decided to bring my walker and not the Zeen as figuring out the Zeen in the car for the first time and the first time I am getting in a car myself might just be too tricky. I do plan to bring it the following week for my appointment with the Dysautonomia specialist so he can see how well I am doing with it!

    I am so proud of myself for making the 1/4 mile loop with the Zeen today. I need to remember that my body works in its own time frame and that needs to be ok. Rehab specialist, therapists, and even friends and family mean well, but I hold the key and knowledge for when my body is going to cooperate!

    For now, I will continue to use the Zeen and getting my legs stronger. I hope to get on the NuStep soon as well (pending being able to get on and off of it).

    I included some pictures I took on my Zeen adventure today!

  • Independence at Last, Well, Sort Of.

    I am truly enjoying my independence to be able to stand and even walk some. I am growing more confident and have given up the transfer board completely at this point. I even have been experimenting with the toilet and standing long enough to undress and not lose my balance.

    I need to keep in mind that I still have a lot of work to do. Balance is a major concern, as is standing tolerance. I am still super wobbly when standing and usually have to hold on to something to keep my balance.

    Without completely oversharing, I am also going to begin the transition out of disposable briefs and into reusable “leak proof” underwear. I am trying a brand call “Everdries” and will hopefully meet my needs and be a whole lot more comfortable, than disposable briefs.

    My last major task is being able to get in and out of a car. I want to practice this before I need to use this skill to get to MUSC. I have a couple of weeks so I am thinking there will definitely be enough time and it might even be a “non-issue” if I get strong enough by then. PT has also offered to help me achieve this goal.

    As far as the Zeen goes, I set the goal that I will complete the 1/4 mile loop around my building by Easter. I think I am going to go outside today with the Zeen and see how I do on the sidewalk. I am excited to meet this goal.

    I also want to get back to using the NuStep, even though I am using the Zeen, I think adding the Nustep back in will be a great plan. I have to figure out how I am going to transfer to the NuStep as well as getting up from it because it is kinda low.

    Rehab is still my first priority in all things right now. I still need to grow stronger, gain better balance, and be able to get up from lower seats. I truly appreciate all of your good thoughts and prayers to make this happen for me.

  • Being Positive Smells SO Much Better than Negativity

    I really try to be positive and spread positive thoughts. I am an optimist by nature and believe the best is going to happen. At least, most of the time. Yesterday threw me for a loop to say the least. Instead of my usual positive thoughts, I quickly spiraled into negativity.

    I know how it happened, first my toilet flooded my bathroom. This was followed by being given some bad news at my tele-health doctor’s appointment. Then, I couldn’t schedule my MRI for my hip. I created my own misery and couldn’t get out of it. My usual, positive vibe was no where to be found.

    The toilet flooded because I had a new grab bar type contraption installed due to my potential hip fracture. The contraption made the tank sit uneven, causing it to leak and spill all over the floor. Maintenance was wonderful and took care of everything, but it was still frustrating and definitely not a pleasant or positive event!

    My tele-health was with my urologist at MUSC. It was a follow up from my previous procedures for my “floppy bladder.” I’ll spare you from the nitty gritty details, but I was essentially told that I will most likely have to self-catheterize for the rest of my life and that there is little that can be done to change that. He is going to have me complete a few more tests to see what can help improve the situation, but he was very honest about the fact that he wouldn’t be able to change the outcome too much, even if insurance does approve some things like botox injections and some medications. This hit me HARD! There wasn’t many positive points from the doctor, despite my full respect for his knowledge.

    If mental funk had a smell, I would smell like teenage boy after gym class for sure. I sulked for a while, tried to distract myself, and went to lunch with some of my favorite residents. None of which helped me change the negativity to positive thoughts. I pouted, told others of my woe, and I would’ve stomped my feet if it didn’t hurt so much.

    So, I did something about it… no I didn’t try yoga, deep breathing, meditation, or even prayer- I slept. That’s right, a good ole nap. With the lights and television off and locking my phone to silent, I vegged out and napped for about ninety minutes. I woke up and took stock of my mood, not rainbows and butterflies, but much better. I was officially on the side of being positive over being negative. I went to dinner, laughed with a friend, and decided I was over it.

    Then I did my usual wind-down routine before falling asleep, all knowing that tomorrow was another day to try to stay on the “Sunny Side of Life!” and be positive for myself and others. I did my usual 2am wake up and had a BIG thought… what is stopping me from using the NuStep Bike as an arm bike? That is, why can’t I continue my cardiac rehab using my arms and not my injured leg/hip? Positive thoughts beget positive actions… I need to reboot myself once more to be able to find my frame of thinking.