Fiercely Independent Pam

Category: Updates

  • Fifty Pounds Gone: My Journey of Weight Loss (This Time)!

    I’ve always struggled with my weight. I honestly do not remember a time that I wasn’t overweight, except a brief time that I worked hard to lose a lot of weight and quickly gained it back. I have always lived by the idea that it was better the maintain than to yo-yo back and forth and feel trapped by my weight.

    Fast forward to the last five plus years of chronic high dose steroids, diabetes, and a slew of health issues, my weight ballooned to a ridiculously new high. For the first time, I felt uncomfortable in my own body, my weight impacted everything and definitely did not help my health issues.

    Unlike the last time I made a major effort to lose weight(about 15 years ago), I didn’t seek out a program or system to follow. I was lucky, something found me. My orthopedic’s office signed me up for something called Prescribe FIT. This is a 1-1 program where I was matched with a health coach and complete virtual visits weekly. They also sent me a bluetooth scale that links directly to their incredible app.

    I use the app daily to weigh in, report on goals set, and can even enter water and nutrition daily. My weekly virtual visits with Anna are great, we check in on weekly goals, struggles, and brainstorm new approaches. It’s a good balance between self-sufficiency and ongoing support.

    Today, I reached just past the fifty pound mark and losing 20% of my starting weight in early May! I am also about eighty pounds down from my max, a little over a year ago. I am quickly looking forward to my next short-term goal of being “just” overweight and not obese. I am struggling to find clothes that aren’t too big and that feels wonderful! For the first time in a very long time, I am wearing “regular” sized clothes and not plus sized. Other people are noticing and that too is a great feeling.

    I will continue doing what I am doing, I think i’ve found my stride in this journey. I appreciate the support from Prescribe FIT, my health coach, Anna, my healthcare team, my family/friends, and everyone who is helping cheer me on along the way!

  • An Un-Modest Update on My Stupid Bladder!

    Now that I have “mastered” the art of self-catheterization, it has just become part of my everyday (well every 4-6 hour) lifestyle. I am successful outside of my own bathroom and having few issues with the process. The biggest point of frustration with my bladder and the process is having to be always prepared. I have a small cosmetic bag full of any necessary supplies. Most of the time, I remember it if I am going somewhere without my wheelchair(I keep it on the back of my wheelchair).

    In the spirit of losing all modesty, medically speaking, I also want to disclose my other issues with what I like to call, “My Stupid Bladder.” I am dealing with incredible urgency issues- like a 3 year-old- who just left the house after being told told to use the bathroom before getting in the car, but of course did not have to go- issues- BOOM! They can be painful and because of recent events, I cannot move quickly to get to the toilet all the time. If I am out of my apartment, it complicates matters even more.

    Additionally, despite not being able to successfully urinate on demand, my stupid bladder leaks. This I believe is the worst symptom, as it is unpredictable, unpleasant, and embarrassing. I have found good success with my favorite Lil Helper reusable pads and “system” These usually prevent leaks from being a bigger problem, as I stubbornly refuse to start bringing a change of clothes with me places. I highly recommend them for both urinary and period issues. SO much more comfortable than disposables and such a better option for the environment. They are super easy to “deal with and clean.”

    This past Thursday, I went back to MUSC for more bladder studies and an appointment with my wonderful urologist. I completed a urodynamics video study that required not much more than my lack of care for modesty. Basically, I sat on a converted table-to-chair where various catheters were placed to record bladder “strength” and other measurements. I then received a large amount of fluid into my bladder that contained contrast material. During the filling, various x-rays were taken of my bladder and vitals were kept.

    The nurse recorded when I reported that my bladder was feeling full and would need to urinate soon, needed to urinate immediately, and feeling immense pressure to urinate. She then told me to try “going” which of course was unsuccessful. She then cathed me and I felt immediately relieved!

    After cleaning up, changing, and getting settled into a regular room, the urologist came in and started talking. The study showed that although my bladder can hold a large amount (thank you teaching), it cannot empty on its own. So in addition to being “a floppy bladder,” it also shows signs of detrusor under-activity (essentially the muscle used to empty the bladder is weak). He recommended trying an additional medication to help with all my symptoms as well as starting botox treatments for my bladder.

    Botox would be administered via the urethra and would involve many injections each treatment(30-50). None of this sounds like fun and would need to be repeated every six months or so in the urologist’s office. The upside would be that If/when it works, I should be completely dry! So that part is very exciting! I am signed up to start in 6-8 weeks.

    So there it is. There is nothing glamorous about any of this and yet the self-catheterization process is in a weird way, empowering. The learning curve was steep and medical professionals seem to always be impressed that I mastered it. I see it as one more thing to keep track of, that is needing to always be sure I have enough supplies on hand, do my part to prevent UTI’s, and keep smiling!

    I will be sure to keep you updated on my bladder, and I was about to apologize for the more “graphic/medical” approach to this post, but feel strongly that more information needs to be shared about this “private” matter. Like I said, my modesty is out the window, anyway! Please reach out to me if you have any questions, especially if you are going through bladder issues.

  • Manifesting, Is it Just Good Luck?

    The English language is tough. So many words have various meanings that just don’t make sense. Take the word, manifest or manifesting, for example. Are we talking about a ship/plane’s document, willing something into being, or seeing something differently? It’s a difficult thing to master for sure.

    Back to manifest or manifesting, I’m not sure if its my stubborn personality that has been called bulldog- like, or my never ending patience to see something through, but I believe in the power of manifesting something into being. My father used to comment on my ability to make something happen though nothing sort of pure will and a LOT of hard work.

    When I was in high school (way too long ago), I made a habit of taking classes that I really had no business taking. Mostly AP or honor level classes. I knew that I wasn’t ever going to be an “A” student, so I might as well take the harder classes and work harder for my “B”, or sometimes worse. It was a system that paid off for me in more ways than one. First, I had better teachers, most of which figured out my plan and supported it. Second, I was exposed to better curriculums that required critical thinking. Third, and most importantly, I got some general education credits out of the way to allow me to take a ridiculous course load in college.

    It was during my first AP class, European History, that I earned my title as a Bulldog. I remember it vividly, my teacher sent me a note (a real paper note through the mail) that simply said “A 3!!! You are a Bulldog!!!” The number 3 was my score, it meant that I would get credit for the course in college and throughout the school year it seems that a 3 was WAY out of reach for me. I didn’t know it at the time, but it taught me that I can manifest something into being. It didn’t only take my brain to work, but a lot of hard work and patience.

    And so it went for many more classes. There was honors chemistry where I know the only reason I passed was because I promised my teacher that I would never torture another chem teacher by taking another chemistry class. The joke was on me when I ended up roommates and best buds with a chemistry major!

    Fast forward beyond high school and college. If I set my mind to something, it happened. It was never easy, but I successfully manifested things like becoming a principal, running a half-marathon, attaining enrollment goals, fundraising for specific causes, adding programs, losing (and then gaining) weight. If I put my mind, heart, prayers, and work into making something happen, it did. These were great times.

    Except when it didn’t happen. No amount of hard work, prayers, or manifesting could stop my school from closing or getting sick, or losing my parents. It’s taking me a long time to realize this is where I gained my fuel for manifesting other things into being. The unsuccessful attempts drive me to be more patient, say more prayers, and work harder.

    I am ready for success to happen to me again. I learned to dream and put good thoughts back into the universe. The bulldog is awake! Today, I received positive news on something I am working super hard at manifesting into being- think wet noses. I am calling this the “Why Not Me?” phase/era of my life. (Thank you Kelli Gerardi) Good things can happen to anyone, so why not to me? Some people get the fairy tale endings, why can’t I get it too?

    I’ve learned that luck has nothing to do with manifesting something. It may help, but hard work, prayers, and patience will win every time!