Category: helpful products

  • When an Uber Ride is More Than Just Transportation!

    Sometimes an Uber ride is more than transportation. Yesterday, I ordered an Uber to go get my Actemra infusion at the rheumatologist’s office, which is only a few miles away. I waited with my rollator and did what I always do when the driver says hello- “Are you able to help me with my rollator?” I asked. She quickly pointed to her handicap parking hangtag and said, “Sure, we handicappers need to stick together!” I knew this was going to be a good ride.

    I got in and quickly exchanged niceties which quickly turned into a full blown conversation about being disabled. We didn’t share diagnosis’s or specifics but both felt like members of a secret club that only those on the inside could understand. We talked about family support, strangers asking questions they had no business asking, and the loneliness of being disabled.

    We shared heartbreaking times that we missed out, or worse, pushed ourselves so hard we ended up in bed for three days afterwards. I think it was the first time I talked with someone who understood my life in person and not online. It was so refreshing.

    She shared and showed me that she, like me, had a fistula and sometimes people think her fistula is a scar from drug use. I told her I never had that problem, but stored that piece of information in my head for later. I offered some advice about mobility devices, especially about my Zeen.

    Unfortunately, the ride was quick and we were saying our goodbyes before we knew it. I thanked her for the conversation and told her it was a breath of fresh air! She seemed to totally agree!

    I no longer drive and depend completely on others to get around, except where my wheelchair brings me. I use buses, Uber, and private transportation companies. I find most of my interactions with drivers to be positive or at least neutral. This trip was positively amazing! You never know who you will meet! I hope I offered as much to this driver as she offered to me!

  • Seeds of Happiness: Spreading Some Smiles and Joy!

    Seeds of Happiness: Spreading Some Smiles and Joy!

    About twenty years ago or so, I was shopping in a little store in Chestnut Hill, Pennsylvania, and found something unique. It was basically a lump of clay that was brightly colored and had a big smile! I picked one up and read the story that came with it and fell in love. The business was called Seeds of Happiness and they exist to spread joy and happiness. I was sold, literally and bought a few for myself and to give out. I still have my original yellow smile and it sits on my dresser.

    Fast forward to today and my small collection that incudes a pumpkin, and lots of opportunities to share a smile with others. As I launch my second series “The ABC’s of My Favorite Products”, I decided to include Seeds of Happiness as my “S.”

    I wrote to Mark, the genius behind this idea and asked him if he could gift me some smiles to make people’s day! He was more than generous and sent a great package that made my day! I decided to start sharing my new smiles with those I interact with! The bulk of my interactions are in my community or with healthcare workers(who really need a smile).

    I decided also that I wanted to document the interactions by pictures or even better would be by video. These interactions would then be shared on my socials and with all of you! I know I should probably be going in some sort of alphabetical order with my products, but I felt a God nudge and started with the Seeds of Happiness Smiles!

    My first smile was shared with none other than a Pam! She was my phlebotomist at the GI office on Thursday. I received some not great news and she was just a breath of fresh air and was determined to get my blood in spite of being such a hard stick. I asked her if she could help me with a “project”, and she agreed. I presented her with a smile and we decided to take a picture of her with her new smile!

    Mark was so generous that I have lots of opportunities to make others smile too! So hold on to your hats and be prepared for videos and pictures. If you are looking for a good gift for someone check out the website for Seeds of Happiness.

    GO AND SPREAD SOME KINDNESS!

    The Front of the Story Card!
    My new friend Pam, with her pink smile!

  • “B” is For Botox and Bladder: The Next Chapter!

    Almost three weeks ago I went for my first Botox injections series for my bladder. To catch you up the short story is after my hysterectomy in April of 2025, I lost the ability to fully empty by bladder by “normal” means. Sometimes it was ok and I could push out urine, other times it was completely impossible. So, I learned how to self-catherize using and in and out procedure each time. I do this 4-7 times a day depending on fluid intake. In addition, sometimes urgency is a major issue leading to leaks and messes.

    I am currently on two different medications to help as well: Gemtesa and Vesicare, both of which have helped tremendously, but I knew I was missing something else. In talking with my incredible Urologist at MUSC, he suggested Botox. I had used Botox in the past for headaches and didn’t have any adverse reactions so I thought this was a good idea.

    I had to wait for an appointment availability, but the time went quickly and soon enough my appointment happened. The process was done in the doctor’s office and the process was smooth but not the most comfortable. I will have a Telehealth appointment in a few weeks to follow up and then continue doing the injections every 5-6 months.

    Now for the positive… I was told it would take 2-4 weeks before I saw the results of the Botox injections, and right on cue, in the last couple of days I have seen great progress. I am now just waking up once per night and the urgency/leakage issues are almost non-existent! I am super happy thus far and the less than comfortable procedure was totally worth it for these results.

    I am so thankful for my honest, straight forward, and kind urologist a MUSC. He has helped me so much and his staff is wonderful. I am thankful for the nurse who took so much time to teach me how to self-cath and for his honesty that this could get better, but most likely not go away.

    I am tempted to place a “sorry for the graphic information” type thing, but also feel like this is my story. I can’t change what is happening to me, but only can change how I react. So, if you don’t like me talking about my bladder issues, I understand and more posts about dogs are coming! lol!