Blog

  • Yes, I Have Anxieties and I Know How to Stop Them!

    A plant and hand holding a piece of paper that reads, "Never let your fear decide your fate."

    I found this image on social media and realized I do this all the time. My fears or anxieties win all too often. I am so busy processing the “what ifs” that I never process the actual events and facts. Take today’s drama- my wheelchair is out of commission still and requires over $1000 in parts alone. I, fairly quickly had myself out on the street because I was paying for my wheelchair repairs and would not have enough to make rent. I get “revved” up and just can’t stop the what if thoughts and negative consequences.

    It is definitely true that my anxieties have anxieties. Sometimes I dive down a rabbit hole so deep that I lose connection with almost anything that makes sense. I have gotten so much better about this in recent years, through recognizing early symptoms and practicing grounding techniques such as breathing exercises, prayer, meditation, and most importantly- fact checking. It is NOT a fact that I will be on the street tomorrow!

    Anxiety is a strange force. It sometimes comes out of nowhere and throws you far off your goal. For me, it is the truest example of devilish behavior. The only way I have learned to defeat this behavior is to confront it with my faith. I need to believe in myself, those that love me, and most importantly to my God.

    My Catholic faith has taught me that God will overcome any worries and tribulations. My faith tradition has also taught me some very helpful actions. I have learned to “work my rosary beads” to ground myself. I have a special devotion to Mary Undoer of Knots. The very image of our Mother undoing our anxieties and stressors of life provides so much comfort.

    I am a believer that you should seek help from all areas of life when faced with troubles. I utilize medications to help me get out of the rabbit holes I find myself in all too often. I do not see this as a crutch or the easy way out. I see the medication as a tool, just like my rosary or even the dance party I have privately in my apartment.

    I have learned that it is important to name behaviors as a result of anxiety. You do not have to be ashamed of having these behaviors, it is a force working against you and with time, practice, and faith, you can overcome the force.

    When I made a change in my life a few years ago, I adopted the mantra- “Don’t let the hard days win!” This includes tackling the anxiety monster, the over-thinking, and finding ways out of all the rabbit holes. Utilize the tools you practiced with, pray for help, and remember to check the facts.

  • Medical Appointments: Keeping Them Organized and Finding Ways to Get There!

    I average 5-12 medical appointments a week. This includes home health nursing, tele-healths, traditional appointments with specialists, and therapy appointments. It’s a big time commitment to attend all of these appointments as well as keeping them all organized.

    To stay organized, I use the calendar on the phone/computer as well as a google docs file that includes any appointments outside of my apartment. The file contains the date/time, provider’s name, address, phone number, as well as a place for transportation notes. I find this file so necessary, as sometimes I need to print or send a copy of upcoming appointments to various providers. I have even started to color code some items on the sheet. The bonus of having it as a google doc is that I am able to share it with various people (family) and they can see any changes or updates.

    Transportation is the biggest issue for me to get to appointments. I try to make local appointments on Tuesday or Thursday when the bus is available through my community for appointments. MUSC appointments require the most resources as I need to coordinate them with either my niece, private transportation company, or using UBER. All are expensive options. All of this also requires me to determine what mobility device I am going to use. If I wake up to go to MUSC with my rollator and feel terrible, I am stuck and can’t switch to my power wheelchair. It’s a lot of thoughts.

    Transportation is a huge hindrance to many people’s access to heath care. If you can’t leave your house, you are significantly limited to the type of health care or quality of health care you receive. Likewise, when you are limited by milage or transportation routes, you become limited.

    I am eager to see my Medicaid application be approved and provide needed support for transportation as well as other things. This process for application was very extensive and difficult. I am hopeful that the results will be worth it!

  • Holding it All Together- Not So Pretty, But Getting the Job Done!

    Have you ever had that kinda morning? The one that makes you think you should just run back under the covers? That was me this morning! So much happened, I’m not quite sure I will remember it all!

    Yesterday, my power wheelchair began randomly shutting off and jerking me forward in the process. I thought it was the connections and put new tape on the this morning to keep them together better. Then I charged the wheelchair. When I removed the charger and turned it back on, I got nada! No power at all. Meaning I didn’t have use of the most useful item in my apartment! I managed to finish my morning routine with my walker. I also made a phone call to the wheelchair company to have them call me as soon as possible!

    Next on the list was that my deposit that was supposed to come through to my bank account did not. Another phone call and figured out I added an extra digit to my account number by mistake! Could take up to a week to work out! Great!

    The shining spot of the morning was physical therapy where I made it 2 laps (1/2 mile) around the building in my Zeen and felt great! I created a new goal- 1 mile (4 laps) by my birthday (May 19th). This will be a HUGE accomplishment!

    Then the hits kept coming… I went to lunch using my walker and transferred to a regular chair. That went ok, but I had to stop several times walking back to my apartment because I was lightheaded and dizzy. Also, the wheelchair repair guy is booked for the remainder of the day and unable to get to my wheelchair until tomorrow afternoon.

    Tomorrow I was scheduled to have my fistula looked at through a special procedure in the OR at MUSC in Charleston. I say was because I found out that I got bumped until next week, but I guess that is still better than going there and then getting bumped! Now I’m scheduled for a 6:30am arrival! Ugh!

    So, here is where I stand: deposit coming in tomorrow, wheelchair repair tomorrow (hopefully this will not wipe out my deposit), fistula procedure next Thursday, thinking I am going to challenge myself and take my Zeen to dinner.

    Days like this is a sign to give yourself some grace. Not wallowing in self-pity, but recognizing that you are holding on with tape (and hopefully a prayer or two). I will proceed gently with myself and laugh through the unplanned moments. This is what we are called to do!

    A goose riding a scooter with duct tape- it reads "keeping it together with tape and denial"