Blog

  • Frustration: What it is and How I’m Dealing with It!

    Frustration… it gets the best of me at times. I try to do things and get tangled in the oxygen line or forget the transfer board and have to go back and get it. These are little things but they sure do add up to frustration level, and then you blow!

    I have such amazing caregivers who do not deserve to even see my frustration never mind the anger that comes with it. But nevertheless it happens. Everything takes so long when you are only using transfer boards. You would think it’s the ultimate motivation to stand.

    With the weekend coming, I don’t have any therapies so it’s up to me to keep exercises going to get stronger. I am by myself a lot which means I only torture myself with frustration. Flexibility and strength in my legs is getting better which are key ingredients to standing up.

    I also finished my Medicaid application, which was a big feat and a cause of major frustration.

    So, I continue to exercise in order to stand up with PT/OT this week. I will ignore the frustration, and always hope for the best!

  • I Was Able to Stand Several Times and Even Take Some Steps! Progress feels great!

    Time for a new blog entry! Lots going on! I was able to stand several times yesterday with a little help from the PT, who is amazing. Then I took a few steps over to my scale to get a weight reading. All of it is an amazing accomplishment.

    I believe I’m not far away from standing on my own, which will open lots of doors to me. Once I am able to stand, I may even be able to get off the toilet on my own, which would be wonderful!

    I cannot say enough about how talented my caregivers and therapists are; they give me motivation when I am lacking and help me get to my goal to stand without support.

    Other than that, I was able to use a shower cap this morning which felt wonderful and while it won’t help me stand, it definitely makes me feel better.

  • Feeling Stronger and Making the Transfer I Need to be Making- Just Need More Therapy.

    I am getting so much stronger on transfer and just moving about. I am frustrated because I’m not getting the therapy I need. I’m not going to get stronger without therapy.

    In the meantime I continue to transfer successfully. I may even try something different today- getting my nails done. It’s all a matter if I want to sit on my bottom for all that time.

    Besides being frustrated over not getting the therapy I so desperately need, I am doing great, especially with transfers.! I have a mental health therapy session today, which I am looking forward to, as she is wonderful to talk to.

    That is about all that is going on, I will continue to work on my transfers.